[Dejibo]

wanna chop off my head, or pluck out my eyes! the headaches have been horrific since the last flair that left me blind. Since recovering some eye sight, my optic nerve is ultra sensitive and lights in stores, or headlights, or bright sun trigger massive cluster headaches. Not just migraines, the kind that make you want to smack your head on the floor to crack it open. UGH! is there ever an end to the merry-go-round of symptoms?!

I want ONE day where I dont have double vision, headaches, body aches, nausea or the like.

Replaced my ancient wireless router with a new one. My old one is about 10 years old, but it required a lot of reading on line as it wasnt hooking up properly. The squinting and trying to follow along with a product that wasnt behaving as "easy set up" claimed it should was making me so upset! I wanted to fling it in the yard and get my gun! After 2 days of wrangling, I have it in place, and working properly. Lets hope I dont have to do this for another ten years. My old router was making access slow and wouldnt allow you to stream movies or music to your devices. Even skype on my iphone or netflix was dragging. Now its zippy quick, and I can secure the network.

UGH! im off for a nap!

[Jules A]

I hope you feel a bit better after napping.

[karousel]

If I could just take your headache for one day for you, I would.

Glad you got your router in place. That's all foreign to me. If it took you 2 days, it'd take me 2 weeks!

[Kitty]

Have you tried drinking something with caffeine? A friend of mine who used to have migraines all the time used to swear by those Coke icees that the convenience stores sell. She said it always relieved her pain quickly.

[dmplaura]

Originally Posted by Dejibo

wanna chop off my head, or pluck out my eyes! the headaches have been horrific since the last flair that left me blind. Since recovering some eye sight, my optic nerve is ultra sensitive and lights in stores, or headlights, or bright sun trigger massive cluster headaches. Not just migraines, the kind that make you want to smack your head on the floor to crack it open. UGH! is there ever an end to the merry-go-round of symptoms?!

I want ONE day where I dont have double vision, headaches, body aches, nausea or the like.

Oh gosh Dej, this sounds so so much like what I went through prior to, and after, my attack of O.N. I am finally JUST coming out of that cycle, thanks I *think* due to switching medications.

Part of the reason I was away from here for so long was that I felt so crummy. I had to go back on short term disability due to 'migraine', but was it really? Migraine medications, oral, IV, didn't resolve it. I began taking Topiramate a week + ago now, and my headaches have vanished. I even had the absolute worst, most stressful, brutal in and out day yesterday, and woke today without a headache.

Maybe the medication is just coincidence, I'm tapering off Lyrica (down to one every second night now, soon to be every 3rd, then none) and increasing the Topiramate per neurologist's instructions, but I'm not going to change a darn thing now. What's working is working.

(Topiramate, by the way, is a trade off - headaches are gone, but I'm having side effects on this medication. The side effects for me are worth staying on the medication if it's keeping the headaches away, they were that bad/affecting quality of life that much for me).

I hope yours go away Dej, or you can find a way to get them under control.

[Mariel]

Sounds like Laura has some success which might be emulated by you, Dejibo. I had doubled vision for eight years. Fortunately I did not have headaches of your type with that. I did have pain in the eye if I watched TV or movies, or went out in sunlight without an eye patch. I never expected this to go away, but it did, completely. I had many years with near perfect eyesight; now, somewhat damaged due to the smoke we had last summer in the Las Conchas forest fire. Oh how I pray no smoke gets here this year; Arizona is burning.

[Dejibo]

Was just taken off toprimate (topramax) because it dropped my blood pressure into the 70s and I kept passing out. Spent the day in the ER. HORRIBLE place!

I slept for about 12 hours and woke...yep...with a headache.

I truly believe its either the optic nerve healing, or the optic nerve has healed as well as it can, and im left with damaged ones. To do anything that requires reading on line or sub titles in movies or TV or standing in the grocery story reading labels in the florescent lights HUGE headaches! I just want to pluck my eyes out!

Its a horrible thing to say, i really do know how it sounds, but I feel sometimes I would have been better off had I been robbed completly of my sight. If I wear a mask and block out the light completely it helps so much! The thing is you cant walk around with a mask on your face or you bump into things. Cant watch TV, cant read a book, cant do email, cant play games, cant fix a meal...

The headaches need to stop now.

[dmplaura]

Originally Posted by Dejibo

Was just taken off toprimate (topramax) because it dropped my blood pressure into the 70s and I kept passing out. Spent the day in the ER. HORRIBLE place!

I slept for about 12 hours and woke...yep...with a headache.

I truly believe its either the optic nerve healing, or the optic nerve has healed as well as it can, and im left with damaged ones. To do anything that requires reading on line or sub titles in movies or TV or standing in the grocery story reading labels in the florescent lights HUGE headaches! I just want to pluck my eyes out!

Its a horrible thing to say, i really do know how it sounds, but I feel sometimes I would have been better off had I been robbed completly of my sight. If I wear a mask and block out the light completely it helps so much! The thing is you cant walk around with a mask on your face or you bump into things. Cant watch TV, cant read a book, cant do email, cant play games, cant fix a meal...

The headaches need to stop now.

They do Dej, and I'd ping your neuro for recommendations as to what COULD be helpful to get them under control. As you can't take Topiramate, you may want to see what other types of medications may be helpful, short or long term. There has to be something out there that'll work for you. Hate hearing you're in such pain and being robbed of what you enjoy doing.