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Old 05-18-2012, 07:32 AM #8
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dmplaura dmplaura is offline
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Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by Dejibo View Post
Was just taken off toprimate (topramax) because it dropped my blood pressure into the 70s and I kept passing out. Spent the day in the ER. HORRIBLE place!

I slept for about 12 hours and woke...yep...with a headache.

I truly believe its either the optic nerve healing, or the optic nerve has healed as well as it can, and im left with damaged ones. To do anything that requires reading on line or sub titles in movies or TV or standing in the grocery story reading labels in the florescent lights HUGE headaches! I just want to pluck my eyes out!

Its a horrible thing to say, i really do know how it sounds, but I feel sometimes I would have been better off had I been robbed completly of my sight. If I wear a mask and block out the light completely it helps so much! The thing is you cant walk around with a mask on your face or you bump into things. Cant watch TV, cant read a book, cant do email, cant play games, cant fix a meal...

The headaches need to stop now.
They do Dej, and I'd ping your neuro for recommendations as to what COULD be helpful to get them under control. As you can't take Topiramate, you may want to see what other types of medications may be helpful, short or long term. There has to be something out there that'll work for you. Hate hearing you're in such pain and being robbed of what you enjoy doing.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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