Hi guys

First I thought it was MS spasticiity - discomfort, tightness and pain in my calf, so I decided to try and stretch it out - then I went to a physiotherapist, who told me I had torn muscles, treated me for that, strapped my ankles and sent me for a massage - the pain didn't go away, so she suggested I get an ultrasound because the pain was 'moving' up to the back of my thigh and she couldn't work out why.

Then I spoke to my Neuro's office, and he told me that 'torn muscle pain doesn't move' and sent me for an after hours full-spine MRI last night. He thought that an ultrasound may not show it and I would be none the wiser. If the spinal MRI shows nothing, then it probably is muscular, so I should get the ultrasound scan then.

I don't have a result, but I am so sick of this - and so darned tired. I haven't walked without pain (or at a minimum on good days, discomfort) since January.

I am working full time as a teacher and on my feet all the time!!! I can't believe how tired I am getting.

Sorry, my turn for a whine and cheese party. Would anyone like to join me? I still don't know what to blame it on, and it is doing my head in.

Lyn

I hear you Lyn, and understand some of what you re going through. So Sorry..

It seems that all the PT & OT I'm doing is causing me some, bring to tears, pain in my right shoulder/rotator cuff. Either that or I'm sleeping wrong...etc? It's my good arm, so that makes it especially difficult.

It's much worse for you, since you are working. I don't know how you do it! I hope Doc can find out what's causing your pain and do something to stop it. That's why we pay them the big bucks.

There's nothing more exhausting then pain, is there? I hope you soon get both an answer and a solution!

So hard to work in pain! And it does wear you out, working against it all day. I hope you have tried magnesium. I need 1000 mg a day to avert spasm. Occasionally now that is not enough. It seems to be progressive, and is worse on days I'm very active. Since my feet "got well" from taking p32 for another disease, I have walked a lot more, but my muscles are feeling it. Have to get in shape again. Try magnesium if you have not. I use Twinlabs (easily findable) or some more expensive ones at times. You could start with 800 mg a day (two capsules, not at the same time).

Awww Lynn...so sorry to hear how much you've been struggling...hope you can get some answers, treatment and relief soon...

I'm sorry about your pain, Lyn. It's exhausting and I'm sure even more so when you have to be working throughout it. I hope they can figure out why you're having so much pain and can do something to alleviate it.

Hello Lynn,

So sorry that you have ben experiencing this pain...and for so long. As I am a registered massage therapist and nutritionist, maybe I can offer some information to help sort some of it out for you; if only to perhaps to suggest some self care ideas that might provide relief.
If you are open to discussing that, we can do so through PM or on the board.

Hang in there. In my prayers.

Erika

Hi everyone

Thanks so much for your support - it really means a lot to me. It's hard to explain the associated fatigue to someone without MS - I get tired enough without the leg thing, but with it, it multiplies my fatigue considerably. You know the drill, the brain is having to work even harder to make everything work together

My treatment so far has involved physiotherapy - massage (once by a massage therapist, and my husband has massaged my leg as well) ultrasound therapy, electro-therapy etc. The physio suggested I use a rolling pin on my calf, and do some stretching as well, both of which I am doing but it doens't seem to help much.

I will certainly do the magnesium thing, I haven't had cramps in my calf for a little while, and it doesn't really hurt much unless I am walking.

Thanks again

Hugs

Lyn

I too am sorry that you're having a tough time with painful cramps.

I take Magnesium tablets with relief, but my husband who gets frightful cramps and does not have MS, gets no relief at all from Mg. He drinks tonic water and the Quinine contained in that seems to help him. Something else you could try is to take a bath with Epson Salts added to the bath water. If you try this be careful though because the Epson Salts make the bottom of the bath very slippery.

I hope you soon find something that helps.

Having spent much of the last year and half in pain, I can understand your frustration.
I would just say; keep looking for the cause. Easy said i know but when you find it, you can fix it. and find relief. What pain killers are you on?