advertisement
Reply
 
Thread Tools Display Modes
Old 05-28-2012, 03:31 PM #1
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default x-post from myasthenia gravis forum: leg muscle soreness

**Hi friends on the MS board, nice to meet you. I am a 36yo female un-DX'd being tested by a neurologist for either MS or MG (myasthenia gravis). I hang out on the MG board, but wanted to get your thoughts on this question as well (only got one reply on the MG board). My opthomologist and GP highly suspect MS, whereas the neurologist is thinking MG. See more of my posts/background on the MG board. Thank you! **

Hi friends,
Undiagnosed but suspected mg Restorativepose here.

A tendency my body has is that I experience muscle soreness in my quadriceps quickly, within one to two hours of using them, and often better by the next day. The weird thing is that I feel the soreness most at rest, and not when I'm walking around and using my legs. Is this possibly a mg stmptom?

Previously athletic (weightlifting), I went through a period where it felt like my quads were disintegtating....they buzzed and tingled and felt weak. Now they're pretty weak most of the time.

For example, today was a hot day and I managed a few hours in our boat which has some steps. Between the steps and also a ladder to climb in and out of the boat, now I'm sitting on the couch with my three year old and my quads are already feeling it. From today already!

Wow....I guess its a reminder that gone are the days of running 5ks and bodybuilding competitions. (Thinking: What on earth is wrong with me??)

Btw, have an mri of the brain and thoracic spine this week Wednesday to rule out ms.
restorativepose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (05-28-2012)

advertisement
Old 05-28-2012, 03:53 PM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

My Neuro thought MG at first with me because my symptoms were mainly visual. Turned out to be MS.

Here is a link to a good article about diagnosing MS......http://www.msfocus.org/diagnose-multiple-sclerosis.aspx.

Waiting for a diagnosis is the hardest part. You're welcome to hang out with us here at the MS forum and The Stumble Inn.

Let us know how the MRI went.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (05-28-2012), SallyC (05-28-2012)
Old 05-28-2012, 04:43 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Hi RP, nice to meet you. With your symptoms, I doubt an MRI will totally rule out MS. Early on in the disease, an MRI sometimes will show clear as some lesions are too small to pick up, but may show up on a later MRI.

Please let us know what your Docs think, after your MRI.

Welcome to our home..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (05-28-2012), restorativepose (05-28-2012)
Old 05-28-2012, 09:02 PM #4
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default

Thanks to you both for the kind replies.

At this time I have only had my first appt with the neuro, where he did a full neuro exam. I had diffuse sensation in my legs with the pinprick test, and lots of spasticity in the toe tapping test, as well as a few other things.

I had a neuropsychological exam that showed pretty big deficits in word recall and memory.

The other test I've had was an emg, which showed a drop across my right elbow, but that was the side I'd had rotator cuff surgery on a few years ago.

Yes the mri....eeeek.... have never considered myself claustrophobic but man that tube is a little tight! Send me your mri tips if you'd like. Hubby is taking me. Hoping to regain the energy afterwards (after meds) to play with the kids that evening.
restorativepose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-28-2012)
Old 05-29-2012, 08:18 PM #5
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Mariel Mariel is offline
Member
 
Join Date: Dec 2006
Posts: 724
15 yr Member
Default

Restorative Pose, put a wash rag or heavy sock across your eyes when doing the MRI. I thought I would be freaking, but with sight blocked, I was fine. I've had more than ten of them since the first.
As for the boat, you say it was hot? Well, we react to heat with MS. Many wear cooling vests and cooling hats.
I got bad a week ago when I was out in the sun more than usual in hot bright weather, including looking at the eclipse at sunset. I have to wear Solumbra cloth clothes to block all UV, as I have a sun sensitivity from another disease. The Solumbra clothing is usually comfortable, but in that heat I was burning. So the next night (takes a day for me to get repercussions sometimes) I was spasming and jerking all night, no sleep.

I can't say why but I don't feel a lot of soreness in my legs except when they spasm so much that I have a long-lasting knot in the calf. Then it hurts. Feet hurt due to peripheral neuropathy, but improved.
Mariel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (05-30-2012), SallyC (05-29-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Myasthenia Gravis bobcatsrule Myasthenia Gravis 8 07-07-2013 09:09 PM
New to this forum(Myasthenia Gravis) MKPULL Myasthenia Gravis 13 02-09-2012 12:29 AM
New and have Myasthenia Gravis MKPULL New Member Introductions 6 01-21-2012 02:26 PM
Is taking Sudafed for post nasel drip bad for Myasthenia Gravis? GrannyJo4 Myasthenia Gravis 3 11-25-2011 01:14 AM


All times are GMT -5. The time now is 12:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.