Hi Cheryl!!! It's always good to have our resident "flygirl" around...

Take care....

Holy guacamole!!! DM, you've been promoted to a full member and I'm a mere junior! This must end now!!!!:eek:

*looking to post anything, anywhere!*

Does that surprise you?

Just trying to pick up your slack!!!!

Hey! I've been promoted and I'm hot on your heels, girlie! All I need is some silly word association game and then my self esteem will skyrocket!

well, AMN, you can say hello to me
 

yup, I hunted you down...you and few others.

SASSY!

HI! ISN'T THAT JUST COOL!


:D

WooHoo! Sassys here!!:partytime2:

SAAAAASSSSSSSSYYYYYYY!!!!!!!!!


*running in for hug*





*falling flat on face*

uh, could I get a do-over?

G'day
 

I am contribute on a couple of sites and was on the old bt before it fell over! Not sure I ever actually intro'd myself. I can usually go on and on and on, but into another relapse,and having trouble with my arm!!

I was dx just over two years ago, at 35. Had probable dx for two years prior, based on sensory symptoms. I am on betaferon (betaseron to you guys) and have tried a couple of things for symptom management, so far they made me stupid and fat, not doing those anymore! :eek: Recent flare is causing lots of pain in left side and extra fatigue, trying amitriptyline (is that called Elavil, over there!) I float on and off the river denial, and therefore float on and off these pages but have found both the sites I frequent absolutely invaluable information when tossing up what to do myself. I try to contribute now and again!

Hi Sandshoe... I welcomed you on another thread, but HELLO again..

SASSY!!!!!!

DM is very happy to see you..... I missed ya!!!! :hug:

*Sandshoe and I met on a different post and she's real nice*

:grouphug:

Hello Sandshoe and welcome to NeuroTalk.

I'm sure I know you from a few different websites;)

Hey, you guys, RiverWild and PrettyPearlGirl are in the house! Kewl!!

I knew RW was here, but Prettypearlgirl too!!

I gotta make more baked beans for this reunion!!!!:)

Now we just need Jenn here and it will be a full house! LOL! :D

Welcome Sassy and Sandshoe...WooooooHooooooo:p :p ...What fun.

I don't know RW but I do know PPG...Come on in and join the party.

Oh Puleessee...not baked beans. You know what they do to AMN!

Evacuate the building! :eek:

Thanks guys for the warm welcome. See some OLD friends here and some new ones too!

Well, going to bed...long day today, long one tomorrow. Can someone tell me when they started putting more than 24 hours in a day?

Slow down Sassy. You're going to burn yerself out there.

Hey everybody!

I've decided to join here to hang with some friends who I miss. My name is Jalee, was diagnosed in 2004, but have been having a time of things lately.

I'm currently on Copaxone and just completed 5 days IVSM for yet another flare. Still recovering, but feeling much better than a month ago, so I guess the meds are doing their thing!

I'm looking forward to meeting everyone here!

:Wave-Hello: Hello Jalee and :welcome_sign: to NeuroTalk

I'm not stalking you....really, I'm not:icon_rolleyes:

Hi Jalee! Welcome! You've landed into a bunch of great people here, we all know what a party the IVSM can be, and we're with you on that one.

Definitely hang here, some of us get carried away (especially DM) but we consider it all a form of therapy.

*pulling Jalee aside for a little whisper*

Stick with me kid, we'll do fine. Did you bring any weapons??

Hi Jalee, my old Friend.:) Welcome!!!

Gaack, Steroids!! Drink lots of Beer or take a bit of Valium, while going through Roid Hell week.:D ....and stay out of the Florida Sun for awhile.

Has your School Year ended yet, Teach?

I hope you are feeling better soon.

Teddy,
The 2nd largest group of people with a myelin disease are those with a leukodystrophy. These are mainly children's diseases but all have an adult variation, or adult onset version. With a clean spinal, you could have one of these diseases (there are about 16 of them, or more.) the bad news is that they are fatal, and genetic, and have no treatment. Look down your family tree to see if there are a lot of unusual things that have happened. Many only take one parent to pass on to children...called autosomal dominant inheritance.

Of course! What is your pleasure?

Now I'm disappointed! Hi, Snoopy!:)

Hi Sally! Wednesday is the last day for students and Friday the last day for me!!!! I won't go back until the middle of August.:D :D :D

Well Hello Jalee!!! Nice to meet you...

(Don't listen to Aftermynap.... she's still on the "wanted" list....

Look forward to hearing more from you...
I'll take those weapons now.....

Back off ya' little weasel! I had her first!

Watch out for that one, Jalee, she's nothin' but trouble.

http://home.earthlink.net/~sal.pal/s.../rolllaugh.gifhttp://home.earthlink.net/~sal.pal/s.../rolllaugh.gif You guys are making me laugh so hard, http://home.earthlink.net/~sal.pal/s.../rolllaugh.gifhttp://home.earthlink.net/~sal.pal/s.../rolllaugh.gif

Hey Jaylee, I hope you have a great Summer and that all your sx are little ones..:)

LOL, Sal, you're an easy mark. DM and I often go off on our little tangents but we'll try to keep them appropriately harnessed.

Jalee, I'm guessing you're a refugee from PT, I think I remember you. That was an odd turn of events but this place is fun too. I'm not sure about Sally yet, I'm treading water with this one.;)

I love being an easy mark..:D

Jalee and I met at BT and continued our friendship at PT and it continues....I hope.:o

Hey did someone mention weapons?????

You know what that word does to me............
*now where is that cabnit key and that bouncing target*

Ooooooh, good point FFM! I'll have to go capture us a target on yonder website! You know where that little bugger lives.

*fetching a few more boxes of fresh rounds*

Here's the little bugger!

*yelling into megaphone*

Open season! Fire at will!!!

Hi all! I'm not a new member, but apparently I never posted in this thread yet. Some of you may recognize my name.

I am not diagnosed with anything. Symptoms since 1999, although dizziness and achiness since the 1980s. A neurologist in 2000 all but told me I had MS (scaring me spitless), then acted like he'd never said it. I've had MRIs with nonspecific "spots," but never had an LP nor VEPs. The auditory EPs were off-the-charts abnormal on both sides, my only really bad test result, but this also is nonspecific.

In 1999 I suddenly lost the hearing in my left ear (when I sneezed hard) and got much dizzier. Before and after the hearing loss I had a cascade of very odd, varied neurological-type symptoms, but all pretty minor. I still sometimes get strange new symptoms, but nothing "big" or tell-tale--just bizarre.

Saw an ENT ear specialist and two neurologists, but no diagnosis. Last neuro visit was in 2003. Hopefully I will never have to see a neurologist again! :)

Since then I've returned to the neuro-otologist (ear specialist), and between his allergy shots and my excellent blue capsule by the name of Strattera, the dizziness and concentration problems are basically a thing of the past!! :)

In about three weeks I'm having Doctor Week (not on purpose, it just worked out that way):

If it's Tuesday, this must be the ophthalmologist (yearly visit--last year the guy, bless him, figured out a glasses prescription to get rid of my strange "ghosting" that occurs when I read looking down, even though he and the neuro-ophthalmologist were stumped as to why it happens).

If it's Wednesday, this must be the rheumatologist. My first (and probably last) rheumie visit ever, and I HOPE but don't necessarily expect that he will be able to help me treatment-wise and MAAAYYYBE even a teeny bit diagnosis-wise with the longtime muscle and joint achiness and the "weak" legs and easy fatigue, all of which have gotten worse recently.

I will just be relieved if he doesn't tell me "it's normal," "it's nothing," and doesn't get that little smirk that tells you he's got you ALLLLL figured out just because you're a middle-aged woman with invisible symptoms. But if that happens, well, I guess I'm used to it. I won't let it drive me to the brink this time.

If it's Thursday, this must be the new gynecologist (previous one retired). Thank goodness I have no issues there, although supposedly you are supposed to get postmenopausal bleeding checked out--but everything always turns out to be nothing.

If it's Friday, it's the good ol' yearly smash-o-gram.

Some of my weird symptoms (which are too numerous to list, even in a place where no one is likely to dismiss me as a hypochondriac!) include seven-years-unexplained Lhermitte's, lots of paresthesias (crawling, "cold" or itchy spots, vibrating shin/foot, etc.), electric shocks in my face and elsewhere, and weird "double shocks" that occur simultaneously in a foot and the upper leg, hip, groin, or ribcage of the same side.

I can "push buttons" in one place (e.g., top of my left big toe) and get a simultaneous reaction (shock) in my left elbow and hand! Bizarrely crossed wires, I conclude.

I am in Portland, OR, have kitties and grown-up kids (the grown-up part is still questionable in their early 20s!), and a devoted hubby. Despite the increasing leg heaviness/weakness and lack of muscle stamina, I work part-time as a library clerk in a VERY busy library, and part time doing freelance work (sit-down at the computer, thank goodness!). I love both my jobs and feel very lucky to be functioning so well despite knowing something's wrong.

Best wishes to all,
Nancy T. (age 50--got the AARP invitation, haven't got the colonoscopy invitation yet, but I'm in no hurry! :) )

Hi, Nancy!:welcome_sign:

It's great to see you posting Nancy:Wave-Hello:

Nice to see you Nancy.:) I'm happy to hear you are doing better these days. So sorry you have no confirmed DX, even if it is all in your head.:D Dumb Neuros.:mad:

Welcome!!:)

Thanks for the welcome, everyone! Very glad to see you all. :)

Nancy

So.....I was playing in the sandbox (being good) when I looked up from my sand bucket and no one was playing....I mean, no one! Must of been the doggy doo that DM left behind from her fall that time!

So...I started wandering and I could smell it. (no, not the doggy doo!)
The Pepsi Dude guy!:pepsi:

So....I came here!

I am a Newbie!!!

Hello SallyC! I am Taffy! I was Dx 5 years ago with Ms. I am a member of the Pin Cushion Club and have been using Rebif for 5 years also. I work full time at a high school in a Child Development Center as a ParaPro in a Special Needs Preschool.

Feed me chocolate and I will be your friend for life! :circlelove:

I like it here! Please let me stay!

FEED you chocolate? You have to share the stash you have in order to stay Missy!

Glad you found your way over here. We left enough hints. All those opened Pepsi cans (and I can't even drink it!)

Running to meet Taffy with open arms! So happy you've joined us! :hug: