Welcome home to you too, MSMommy. How old are you Kiddles? I have GrandKids all sizes and ages. The youngest is a boy - 8mos and the oldest is a Girl/Woman 20yrs. The oldest is a Step Grand, as are 4 others. I rarely see them, since their Mom Passed away, but they are wonderful.

The 5 youngest are my Daughters Children, and I get to see them all, often. They make my day.

Summer Heat and MS do not go well together. I used to love summer, now I dread it. There's nothing worse than a heat flare. It just saps all the energy right out of you. Bah!

So glad you are here and I'm so glad DocJohn gave us this nice home.

Talk to you soon.

Hi all! I asked in another thread if it would be ok for me to join you here, even though I "only" have myelopathy and not MS (along with CMP and a few other problems.) I'll try not to be a nuisance I am a member of the NMSS and also support the local MSS and attend support meetings. TC JD

Welcome JD, nice to have you aboard.

Welcome, hopefully you will be able to gain some knowlage that you will finn helpful.

Thanks Sally!

I'm not on any meds at all. Neuro says no because he doesn't know what he's treating. I'm really not sure how they now know I don't have MS, since neuro no. 1 was convinced enough to tell me I had PPMS without meeting the criteria!

Seeing another neuro now, hopefully he'll get to the bottom of things eventually but it's SO frustrating, as I'm sure many can understand! Particularly as I'd just managed to eventually get my head around the PPMS diagnosis and was trying to come to terms with that.

Ah well, nice to meet you all, look forward to talking soon!

Hi All.

What a good thread Sally! It's a nice way to meet everyone.

I was also a member of the old BT...AKA jeny218. Although I didn't post there for a quite a while before it crashed.

I've been in the diagnosis phase for three years now. I showed my first lesions in May that the doc is keeping an eye on. I also had my first known 'flare' just a couple weeks ago (still recovering). As far as diagnosis goes, I've been told that it's most likely early MS but need to wait for the lesions to change to be clinically doagnosed. I say early treatment!!

Anyhoo, I'm married to my best friend and have four babies...6,8,10, and 12. I probably don't even have to say it, but I'm a stay at home mom. And I love it!

It's so nice to meet you all!

Teddy, I hope you get answers soon. I know all to well how frustrating this can be.

Well I've been posting on BT2 for awhile but never formally introduced myself. How rude!!!!!! I'm 56, been dx since '97, had to quit work in '99. got SSD in '01. Being on SSD allows your body to heal some. I was a member of the old, old briantalk back in 97. I have been married to the same man for 32 years now, have two daughters, ages 25 and 29. The oldest has one daughter, age 5 and another due in November. It hasn't been an easy pregnancy at all and we will all breathe a sigh of relief if she lasts till 40 weeks and everything is fine. I get my grandaughter for as long as I can take it in October during her fall break!!!!!!!!! My other daughter got married last June, was one of the many new marriages here before their spouses were deployed. Her husband comes home sometime late next month or early November. It has been my prayer that he comes home before my other grandchild gets here!!!! This daughter just bought their first house. It was kind of difficult buying a house with him in Iraq but they had a wonderful agent and we thank God for the internet. I have a wonderful little kitten. I guess that's all for now.

Sally, I forgot to say I LOVE your puppy avatar. So cute! And you're right, it is wonderful to have my Teddy Support Squad. My cheersquad also includes a giant kitty cat, a giant rottweiler cross golden retriever, and a golden retriever (who is large but not giant ).

I'm really so glad I "came out" - this seems like a great forum with so many nice people.

Daphne, I hope you get answers soon too! You're right, the whole diagnosis process can be very nearly soul-destroying.

I also wholeheartedly agree re early treatment. When I was diagnosed with the PPMS, I was kind of shattered when the neuro told me they wouldn't give me CRABs or anything because in his experience it made things worse with PPMS. Not that one desperately wanted to inject oneself regularly, of course, but to me it was better than being told "go home, don't get stressed, don't get hot, don't get tired, don't get infections and enjoy your life". Which is verbatim what this neuro said. He clearly failed Bedside Manners 101 while studying. Not to mention Real Life 101!!

Teddy,
The 2nd largest group of people with a myelin disease are those with a leukodystrophy. These are mainly children's diseases but all have an adult variation, or adult onset version. With a clean spinal, you could have one of these diseases (there are about 16 of them, or more.) the bad news is that they are fatal, and genetic, and have no treatment. Look down your family tree to see if there are a lot of unusual things that have happened. Many only take one parent to pass on to children...called autosomal dominant inheritance.