Welcome to the New BT1 MS Forum.

Come in and introduce yourselves. I'd love to meet you. Do you have MS, are you in the DX process or do you have a loved one with MS?

Dis is Da Place..

Hi Sally, I used to be a member on OBT (I was Teddy1) and your nice welcoming message encouraged me to stop lurking here and come out into the open!

A little about me - I am now in the Land of Confusion. I was diagnosed with PPMS in October last year despite only one brain lesion and one "suspicious patch on my cervical spine" on MRI and a negative LP, and had the diagnosis rescinded earlier this year. Apparently I am now suffering from "a neurological condition of unknown etiology". Fancy talk for "we don't know what's wrong with you".

I need a wheelchair or a scooter to go any distance and as of Thursday last week, am struggling to even heave myself around the house which is very scary for me. Not so much fun and I have an appointment this afternoon with the Dreaded Neurologist who will, I'm sure, shake his head and tell me yet again I'm a mystery. But - I have a lovely husband and a gorgeous seven year old daughter who keep me cheery and do so much for me around the house.

Thanks for encouraging me to come out and play!

Teddy

Thanks for this much needed thread, as BT2 is still in it's infancy.

I was an active member of BT1. I have had ms for 16 years, and until I found brain talk, I had never reached out to the ms community for support and info. Boy was I missing out!

I am a happily married mother of 2. I struggle with mobility issues that vary widely from one day to the next. The summer heat is my sworn enemy.

The level of compassion and depth of information that I have received from BT members has been invaluable.

I am so happy this community is up and running again with so many "familiar faces"

Welcome home, everyone!

MSM

Hi Teddy, nice to meet you. Isn't Limboland the pits? Especially since you are having so many of the rancid sx. Darn Neuros...how can he/she be sure you don't have MS? Are you seeing an MS Specialist? Are you on any of the MS Meds?

I'm so happy to hear that you have good family support. That makes the battle so much easier, if you have a loving cheering section.

I'm so glad you came out of lurkdom. You and I need all the support we can get.

Hugs,

Welcome home to you too, MSMommy. How old are you Kiddles? I have GrandKids all sizes and ages. The youngest is a boy - 8mos and the oldest is a Girl/Woman 20yrs. The oldest is a Step Grand, as are 4 others. I rarely see them, since their Mom Passed away, but they are wonderful.

The 5 youngest are my Daughters Children, and I get to see them all, often. They make my day.

Summer Heat and MS do not go well together. I used to love summer, now I dread it. There's nothing worse than a heat flare. It just saps all the energy right out of you. Bah!

So glad you are here and I'm so glad DocJohn gave us this nice home.

Talk to you soon.

Hi all! I asked in another thread if it would be ok for me to join you here, even though I "only" have myelopathy and not MS (along with CMP and a few other problems.) I'll try not to be a nuisance I am a member of the NMSS and also support the local MSS and attend support meetings. TC JD

Welcome JD, nice to have you aboard.

Welcome, hopefully you will be able to gain some knowlage that you will finn helpful.

Thanks Sally!

I'm not on any meds at all. Neuro says no because he doesn't know what he's treating. I'm really not sure how they now know I don't have MS, since neuro no. 1 was convinced enough to tell me I had PPMS without meeting the criteria!

Seeing another neuro now, hopefully he'll get to the bottom of things eventually but it's SO frustrating, as I'm sure many can understand! Particularly as I'd just managed to eventually get my head around the PPMS diagnosis and was trying to come to terms with that.

Ah well, nice to meet you all, look forward to talking soon!

Hi All.

What a good thread Sally! It's a nice way to meet everyone.

I was also a member of the old BT...AKA jeny218. Although I didn't post there for a quite a while before it crashed.

I've been in the diagnosis phase for three years now. I showed my first lesions in May that the doc is keeping an eye on. I also had my first known 'flare' just a couple weeks ago (still recovering). As far as diagnosis goes, I've been told that it's most likely early MS but need to wait for the lesions to change to be clinically doagnosed. I say early treatment!!

Anyhoo, I'm married to my best friend and have four babies...6,8,10, and 12. I probably don't even have to say it, but I'm a stay at home mom. And I love it!

It's so nice to meet you all!

Teddy, I hope you get answers soon. I know all to well how frustrating this can be.