Finally had my appointment with the local neuro (not an MS specialist) who isnt happy with the look of my optic nerve, but since I refuse to take the DMDs he said he is not surprised that my body is fighting hard. I told him how unhappy I was that it takes MONTHS to get to see him. I have been on the emergency call list for 6 weeks! WTH?!

He is sending me to either Boston (freak out!) or back up to Dartmouth to see the neuro/opto specialist. She deals with neuro conditions of the eyes, so if you look in and it looks pretty normal, most eye MDs would not know how to pick apart what is going on, but this one will. Takes MONTHS to get to see her. or I could go to Boston and be seen in a week or two. I dont know what to do. DH HATES Boston traffic, its an easy city to get very lost in, but maybe we could go the night before, stay overnight, and do a trial run. this would give us a night out. Sigh...dunno. Will speak to regular MD today.

He spoke of things like PPMS since I am having fewer relapses, but more symptoms. He said I am not having clear cut lines that mark periods of time of "when it starts, and when it ends" and there fore he may be thinking of speaking to someone about changing my dx. I asked what dif it would make to me. he said "since you dont take the DMDs ...none. we would still continue to treat your symptoms, and try to stay ahead of it, but it would just more appropriately fit your symptoms. He will see me in six weeks and we can re think it then. He made the appointment so that I didnt have to wait 6 months to worry.

He is really worried about the visual migraines and the actual migraines not being controlled, but each med we have tried ends in disaster. BP so low I cant stand up, gastroparesis...He wanted to put me on meds for bladder spasms but all of them say "if you have delayed gastric emptying...dont take this" stuff in their handout. So...im kinda stuck on that one.

Im kinda worried. should I stay with local guy that I like? or should I suck it up and go back to big girl hospital and deal with the folks that have an MS clinic? even tho there are NO MS MDs in it right now. The big man retired, and so did half of the other staff, so its being run by interns right now.

GAWD I hate this stupid disease! so, thats my check up. All chatter, no action.