Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-14-2012, 08:30 AM #2
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

Hello and welcome. I am soooo sorry that you are struggling and the medical community hasnt been able to give you real answers, or real support.

Is there an MS center near you? these folks are expert at sorting out what is what and what isnt what. many of us go, even if we have to travel and get our dx and then we use a local neuro for follow up care. Your problems sound multi level and you may need multi level care.

Let me warn you in advance, there are more than 100 diseases that can mimic MS including the brain lesions. Your MD will take that 100 (its actually more like 400) and start ruling out the easy ones. Vit D or B12 def or other vit stuff. Red cells, white cells, plasma counts, thyroid levels adrenal levels...once they move past those they start looking at things like Lyme, lupus, Sjoghrens, and so on. Once they get to the lower end, they start looking at migraines, visual or optical migraines and the like. Finally they will move into the "cant prove or disprove" them catagory. There are a handful of disease that cannot be proven till autopsy and since we dont want one of those just yet its a guessing game as to which of these diseases fit YOUR pattern. Everything from where your lesions live to how often you have a head. they take all into account. Then when they think you are IN a flair (you rarely gain any answers when not in a flair) they will do a spinal tap. If there is inflammation in your brain, it will show up as O bands in your spinal fluid.

There is something called CIS or clinically isolated syndrome. This means you have a lot of symptoms that could fit in one or the other catagory but they cant place you there just yet. Some folks end up on treatment anyway, and some folks are told they have to wait for their disease to turn the corner and identify itself.

I wish you the best of luck. let us know how it goes. As for your tootsies it could be a potassium def. or you could drink tonic water at night for the quinine which is well known to help muscle cramping.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
offinthedistance (07-15-2012), SallyC (07-14-2012)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New member with some pcs questions... Dolfinwolf Traumatic Brain Injury and Post Concussion Syndrome 6 04-06-2012 07:33 PM
New member with a few questions karsten Peripheral Neuropathy 5 08-20-2011 10:17 PM
new member with some questions.. mary in VA Aneurysm 5 12-19-2008 08:15 PM
New Member with questions magnus General Health Conditions & Rare Disorders 5 02-19-2007 04:09 PM
New member with some questions magnus ALS 19 02-15-2007 09:30 PM


All times are GMT -5. The time now is 02:38 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.