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Beta interferon has not proven it stops disability progression

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Old 07-25-2012, 09:50 AM #21
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Quote:
Originally Posted by Harry Z View Post
How true! It gets me, though, that companies such as Biogen publicly state that they have the MS patient's best health intere$t$ in what they do!!!
What do you expect the greedies to say?
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Mariel (07-25-2012)
Old 07-25-2012, 12:51 PM #22
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Yes, they need to reassess again what causes MS. obviously don't have the answers. I have posted several times on that study done a few years ago saying that they thought some MS was auto-immune and some chemical, that is, from some sort of poison. I am pretty sure I have the latter, my poison being "excess porphyrins", but there could be others. It is terrible to me that you and others went through those wasted years. I went through many of the same, but not on these drugs. I rejected Beta when I read the possible side effects, but at the time did not know WHY I would have reacted to Beta so badly I could not take it.

Quote:
Originally Posted by Dejibo View Post
Betaseron made my liver VERY unhappy. within 60 days I hit a clinic record for all time highest LFT count. They were ready to admit me and detox me at the time. I didn't feel bad so I said no. I did naturalistic stuff to detox and then went on to use Copaxone for 4 years which I felt took a year to get started, worked for 2 years and then I begged to be released for the last year. i felt horrible on the stuff, and it wasn't stopping my disability train anyway.

What a stupid disease. They really have no real answers and most of what we get is a guessing game. "what does this drug do?" they respond "well, we dont really know for sure, but what we think happens is..." UGH!
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