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Old 07-18-2012, 06:44 PM #1
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This has always been a fear of mine. I mean, Im injecting this chemical into my body, and not really knowing exactly whats happening in there. Just hopes. Im taking dmd's for the wrong reason I believe. I had 2 really bad flares one in October and then another in December and they left me disabled. Doc said it was time for a dmd and my dh agreed and said I had to give it a chance for at least a year. So, Im doing it, for them. Im doing a dmd, taking baclofen and amitriptyline, doc wanted me on something for the tremors and really pushing tysabri and yada yada... NO MORE DRUGS!!!
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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Old 07-19-2012, 08:25 AM #2
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The last year I was on Copaxone I did it for DH. He was terrified that I would lay down the needle and in a year be in a chair. After educating him about this med, and its side effects and what it could and couldnt do, he agreed. Changing my diet made me feel better. getting more exercise made me feel better. reducing stress made me feel better. Copaxone made me feel oh so much worse. I kept hearing about silent damage and how i really needed to be on this. I am so glad I quit. I feel like I got my life back. Im dented, i have divits and while im not a bikini model, i like my body!
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RRMS 3/26/07
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
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Old 07-19-2012, 09:08 AM #3
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I'm lucky in that, for now, Copaxone isn't causing me any problems that I am aware of. If it is doing long term hidden damage so be it. I'm taking it with the hope that it will help with some aspect of this miserable disease.

If it doesn't help, oh well, at least I feel as if I tried and in the meantime I do feel good for the most part which is really my goal.

Have I said how much I hate this miserable disease lately?
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