Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-01-2012, 11:58 PM #4
KittyLady's Avatar
KittyLady KittyLady is offline
Member
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default

My dx hit me out of left field. I never heard of MS before, and was clueless as to what it was. There are so many illness that mimic MS, it can take along time sometimes to dx. I was dx after sx check and MRI. My LP was negative, but everything else pointed to MS. I then went on my MS rollercoaster with neuro's. I saw no less than 10 different neuro's, none of them MS specialists, and they all had a different opinion. One thought I suffered from depression, another thought I suffered from migraines and called it migraine neuralgia, another one thought I was fine and all my sx were just in my head . I did have 3 that agreed I had MS. I did this roller coaster for about 5 years and then gave up. I wound up in the ER with sz's one day in 2002, and the MRI showed the MS lesions and my new neuro immediately put me on a dmd and some sz meds. Fast forward to October of last year, I had a bad flare and then had another bad flare in December. My new neuro wanted another LP to be done, so I did it and it had those nice little o-bands of MS. I was then sent to a MS specialist, and Im now on my second dmd, and although Im disabled now, I feel Im doing good otherwise. The journey can be a p.i.a., but worth the fight. Never give up. You are your best advocate. Take care.
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (08-02-2012)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Just Wondering teacherfeet Peripheral Neuropathy 1 12-13-2011 07:29 PM
just wondering if someone can help gemma Children's Health 1 10-10-2009 09:39 PM
wondering taratidrick Pets & Wildlife 2 09-20-2009 09:19 AM
wondering what to do now Jennelle Reflex Sympathetic Dystrophy (RSD and CRPS) 13 05-14-2009 09:31 AM
Wondering Again...I wonder #182 tamiloo Survivors of Suicide 24 05-12-2009 05:26 PM


All times are GMT -5. The time now is 12:53 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.