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#1 | |||
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Member
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Its normal for me to go totally limp and collapse when its too hot, and I get stiff when its cold. Im use to that, but lately my body has got things somewhat confused. In the horrible heat here lately, my legs decided to get extremely stiff and painful. Now that the heat has broke, my legs feel abit like jello but the spasms are even worse than when it was hot out! Just cant catch a break. I tried my exercise bike to loosen the muscles, Ive tried walks too, but that all just makes it worse. Im going to be in a baclofen coma soon if this doesnt let up. I dont like this "ride" and Id like my money back!!! I give back the MS I never wanted, and I get all my co-pays back that I never wanted to give. Win - win
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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"Thanks for this!" says: | ANNagain (08-07-2012), Blessings2You (08-06-2012), Judy2 (08-07-2012), ms er since '06 (08-07-2012), SallyC (08-07-2012), yeti (08-07-2012) |
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#2 | |||
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Senior Member
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Awwww KL.....I'm so sorry you're having those spasticity problems.
![]() All I can offer is a big hug and to let you know you're not alone. ![]()
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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#3 | |||
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Member
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So sorry that you are feeling like this....the only thing I can suggest to you, is that if you try to stretch the muscles out, don't stretch too far!!! I have torn muscles doing that....six months later, I am still in daily pain - so go gently.
Hugs Lyn
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#4 | ||
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Senior Member
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Kitty Lady,
I have no idea what would help you. ![]() ![]() I have been known to use a large heating pad in an air- conditioned room. Crazy. ANN |
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#5 | |||
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In Remembrance
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Stretching and get plenty of rest and water.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#6 | |||
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Member
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I'm starting to think circulation (lack of) is playing a role, for me anyway.
We all know pain meds relax muscles. When I had colostomy created, my stomach would vibrate every time I tried to get up for therapy. I learned to have the nurse give me half dose of delotid/morphine type drug. They learned with me. Amazingly lt stopped them dead for hrs. I currently take 7 20mg baclofen per day yet spasms won't quit, and yes I exercise swimming 300+ meters per day. WHY did my leg spasms increase with MS when my spinal cord is clearly cut at C7??? HEAT - I was overheated to the max a few weeks ago. I hardly got any spasms in legs when getting out of car. Heat lowers thickness of motor oil, does it do the same to blood which would increase CIRCULATION?? |
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#7 | |||
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Elder
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Gentle stretching is so helpful for me when dealing with spasticity. Go onto the national multiple sclerosis society's website. There is a PDF with stretches that helped me so much...my neuro's nurse gave me a printout and I try to remember to do them as much as possible.
I also use a yoga strap to stretch my hamstrings. It's a gentle pull that really stretches them...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#8 | |||
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Wisest Elder Ever
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My left leg has spasms every night. I can almost set my clock by the time they begin. I take 1 baclofen at bedtime otherwise I'd be moving around all night. Sometimes I get spasms during the day but I don't take baclofen then. I tend to tolerate them better during the day and my guess is it's because I'm not trying to get comfortable for sleep then. Moving around helps me work through them.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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