advertisement
Reply
 
Thread Tools Display Modes
Old 08-06-2012, 02:33 PM #1
KittyLady's Avatar
KittyLady KittyLady is offline
Member
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default My spastic legs

Its normal for me to go totally limp and collapse when its too hot, and I get stiff when its cold. Im use to that, but lately my body has got things somewhat confused. In the horrible heat here lately, my legs decided to get extremely stiff and painful. Now that the heat has broke, my legs feel abit like jello but the spasms are even worse than when it was hot out! Just cant catch a break. I tried my exercise bike to loosen the muscles, Ive tried walks too, but that all just makes it worse. Im going to be in a baclofen coma soon if this doesnt let up. I dont like this "ride" and Id like my money back!!! I give back the MS I never wanted, and I get all my co-pays back that I never wanted to give. Win - win
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (08-07-2012), Blessings2You (08-06-2012), Judy2 (08-07-2012), ms er since '06 (08-07-2012), SallyC (08-07-2012), yeti (08-07-2012)

advertisement
Old 08-07-2012, 07:00 AM #2
Judy2's Avatar
Judy2 Judy2 is offline
Senior Member
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Default

Awwww KL.....I'm so sorry you're having those spasticity problems. I can certainly empathize with you. The weather used to be a big factor in my case, but as the disease has progressed, any movement, anywhere, at all will send my legs, arms, back, etc., etc., etc., into crazy spasms. Of course I don't walk anymore, but those things are horrible....pain and more pain.

All I can offer is a big hug and to let you know you're not alone.
__________________
_____________________________________________

.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
.
Judy2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (08-07-2012), KittyLady (08-07-2012), SallyC (08-07-2012), yeti (08-07-2012)
Old 08-07-2012, 07:56 AM #3
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

So sorry that you are feeling like this....the only thing I can suggest to you, is that if you try to stretch the muscles out, don't stretch too far!!! I have torn muscles doing that....six months later, I am still in daily pain - so go gently.

Hugs

Lyn
__________________
Lyn
.



Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (08-07-2012), Debbie D (08-09-2012), KittyLady (08-07-2012), SallyC (08-07-2012), yeti (08-07-2012)
Old 08-07-2012, 02:16 PM #4
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
Default

Kitty Lady,

I have no idea what would help you. I hope that this doesn't last long, though.

I have been known to use a large heating pad in an air- conditioned room. Crazy.

ANN
ANNagain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (08-07-2012), SallyC (08-07-2012), yeti (08-09-2012)
Old 08-07-2012, 05:25 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Stretching and get plenty of rest and water.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (08-07-2012), yeti (08-09-2012)
Old 08-08-2012, 12:28 PM #6
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
Default

I'm starting to think circulation (lack of) is playing a role, for me anyway.

We all know pain meds relax muscles. When I had colostomy created, my stomach would vibrate every time I tried to get up for therapy. I learned to have the nurse give me half dose of delotid/morphine type drug. They learned with me. Amazingly lt stopped them dead for hrs.

I currently take 7 20mg baclofen per day yet spasms won't quit, and yes I exercise swimming 300+ meters per day.

WHY did my leg spasms increase with MS when my spinal cord is clearly cut at C7???

HEAT - I was overheated to the max a few weeks ago. I hardly got any spasms in legs when getting out of car. Heat lowers thickness of motor oil, does it do the same to blood which would increase CIRCULATION??
EddieF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (08-08-2012), SallyC (08-08-2012), yeti (08-09-2012)
Old 08-09-2012, 10:31 AM #7
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

Gentle stretching is so helpful for me when dealing with spasticity. Go onto the national multiple sclerosis society's website. There is a PDF with stretches that helped me so much...my neuro's nurse gave me a printout and I try to remember to do them as much as possible.
I also use a yoga strap to stretch my hamstrings. It's a gentle pull that really stretches them...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (08-09-2012), yeti (08-09-2012)
Old 08-09-2012, 10:36 AM #8
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

My left leg has spasms every night. I can almost set my clock by the time they begin. I take 1 baclofen at bedtime otherwise I'd be moving around all night. Sometimes I get spasms during the day but I don't take baclofen then. I tend to tolerate them better during the day and my guess is it's because I'm not trying to get comfortable for sleep then. Moving around helps me work through them.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (08-09-2012), SallyC (08-09-2012), yeti (08-09-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
RSD in Legs PhyllisJ Reflex Sympathetic Dystrophy (RSD and CRPS) 9 07-11-2012 11:41 AM
spastic without copaxone? Dejibo Multiple Sclerosis 6 12-09-2010 01:44 AM
My legs went out from under me! stonesfan53 Peripheral Neuropathy 14 08-29-2009 12:09 AM
New legs msarkie The Stumble Inn 3 12-25-2008 11:08 PM
Hip Migration in Spastic CP CrutchBunch Children's Health 6 09-28-2006 10:29 AM


All times are GMT -5. The time now is 11:10 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.