I agree Erika~It is an interesting and stimulating conversation for me as well.

It does not surprise me that your symptoms did not improve with supplementation. Although in the end, the evidence may prove to you that you are indeed lacking these enzymes, I don't believe you will effectively be able to heal your GI tract (including your pancreas) through supplements. In fact, I think much of the evidence will show that taking supplements of nutrients that you have lost the ability to metabolize could be very detrimental.

What kind or specific diet are you talking about? Thanks.

Found this.......
http://www.inspire.com/BehcetsGirl/j...iency-disease/

Just to be clear, I am not a formal researcher (meaning no one pays me), not in the medical profession, or a scientist. I am just someone who was diagnosed with lupus and believe I have found the reason why I got sick. I think the information applies to MS and other diseases and conditions as well, and would like to share what I have discovered here. I don't want the members here to be involved in any type of research. When I say "we", I am referring to my daughter who has helped me put the pieces together. Sorry for any confusion.

Good detective work Sally~ It is a diet based on healing the GI tract and restoring these missing enzymes. I would first like to provide evidence of what I believe is taking place in the disease process though. Then we can discuss the diet.

Interesting link; and the comments are as well.

With respect to diet, the low fat-fresh foods (raw) diet recommended in the link takes us back to Swank's diet recommendations; or a derivative there of, and that in turn would seem to take us even further back to interfering with a condition rather than with a cause. Either way, many have experienced profound benefits from the Swank type diet, while others not so much.

This sort of variance in response is what makes the auto-immune inflammatory diseases such a head scratcher for everyone concerned. While interfering with or manipulating conditions has its merits for symptom control, it does seem that the 'cure' would more likely be found in the cause (the seed itself).
Similarly, for a more reliable and universal response to potential treatment, it seems to be more reasonable to interfere with the cause; and that seems to indicate something along the lines of gene therapy holding the 'secret cure'.

Unfortunately, gene therapy is in its infancy and only recently has it been found that not only the genes themselves carry the blue print for encoded tendencies, but so does the protein coat that envelopes each and every strand of DNA. When the human genome project (DNA mapping) was being done, that vital bit of protein material was centrifuged out of the test samples and discarded. This would be like evaluating an architect's blue print but eliminating the contractor/builder who would ultimately interpret it and utilizing their own individualized 'tastes', perform the construction.
Apparently, at least according to current research in genetics, it is that protein coat that is so individual; and thus contains at least some of the information that governs how each individual person expresses each gene. The ever changing protein components within the body also seem to allow for an equal variance of expression during cell division within the same individual over time and changing conditions.

For example a person might have a gene that when activated promotes excess inflammation, but it is apparently the protein coat that determines what tissue that inflammation may primarily affect. Perhaps at one point in their life the inflammation settles in the neurological system, and perhaps later, changing conditions (diet would be an example), exert an influence on the protein coat that envelopes their DNA, and the inflammation then has a tendency to settle in their digestive tract.

This may very well be the reason that although, and thus far, no consistent genetic link has been found between family members who share a specific auto-immune disease in common. Due to having been exposed to similar conditions, they may in fact share in common the information that ultimately is expressed through the protein coat of DNA.
This gene + common denominator theory is supported by the observation that at least for MS, there seems to be a connection between race (genetic predisposition)+ climate (condition).

Confused? As I said earlier, this has been my struggle too. Just trying to get a handle on the research that has been done thus far in this field is enough to test the patience of a tortoise. Advancing the research has me taking a deep and humble bow to those who have dedicated themselves to the task.

In the end, it may very well turn out that after all the research and hypotheses are critically evaluated, and potential treatment is sent into motion that it is found to be at least partially off base.
So it has been in the case of cancer research, where after exploring genetics as a cause, some researchers have begun to give equal weight to the virus theory (cause), and many have also begun to couple that with 'contributing factors' (conditions) theory as well.

If nothing else, perhaps the auto-immune diseases like MS have served to foster greater compassion, understanding and patience within those who are involved with it.
I believe that it is so.

With love, Erika

Hey Erika~I do not recommend a raw food diet. Once we get further along, I think you will understand why. I believe that,yes, we have found the "seed" as you say. So what do you say we get started?


I know that many people would find it difficult to believe at first that the numerous symptoms and findings in MS could all be traced directly back to one main cause. And yet, the symptoms and findings I posted previously are all symptoms and findings in lupus, as well as MS, and researchers have found that when this enzyme (DNase1) is removed in mice, for instance, many of the symptoms of lupus result. All of the many and varied symptoms I listed previously that encompass lupus and are the same as in MS, become manifest when these enzymes are missing. Here are a few studies on lupus and DNase1.

Mutation of DNASE1 in People with Systemic Lupus Erythematosus
Yasutomo, K., T. Horiuchi, S. Kagami, H. Tsukamoto, C. Hashimura, M. Urushihara,
Y. Kuroda. 2001. Nat. Genet. 28(4):313-4.
*edit*


Rescue NET for Lupus Patients
ScienceDaily, May 3, 2010
*edit*

Enzyme Shortage May Lead to Lupus - DNase I
Seppa, N. 2000. ScienceNews.
*edit*
Journal Reference:
Walport, M.J. 2000. Lupus, DNase and defective disposal of cellular debris. Nature Genetics
25:135-136.

Hi
just a reminder that we do not allow any copy/pasting from sites that have copyright statements as that can get us into trouble with them. Only work that is in public domain can be copy/pasted.

Once you have made sufficient posts to be able to link, you can then give the title & citation and link for others to read, sometimes the abstract *if* the publication permits that. You need to check first.

Annesse,

Thank you for your comments.

At the outset, I should perhaps reveal that I am a certified nutritionist with an interest in evidence based research and protocol; thus I am very interested not only in what you intend to present, but also in what those assertions are based upon.

With love, Erika

Hello Annesse,

QUOTE: "I was diagnosed with lupus, CFS and fibromyalgia over 20 years ago."

Please forgive me for my eagerness to receive, read and discuss the information that you have. I immediately meant to, and then promptly forgot to say how very sorry I am that not just one, but apparently three auto-immune inflammatory conditions have been a part of your life for the last 20 years.
It certainly does prompt us to do some research ourselves, doesn't it?

Again, I look forward to reading and discussing the information that you have; and perhaps your personal experiences with respect to following the recommended protocol as well.

With love, Erika

My 'theory' is completely different. When you have so many other illnesses/diseases at one time it's just something that you just have. I have a history of cancer, heart disease, high B/P, high triglycerides, psoriasis, MS and I'm sure others that I can't think of right now since it is the end of the day there are some thing you can't explain. The body just goes kaput.

I just read what I said and hope that you didn't take it the wrong way. It kind of came across like I was ridiculing you. I am not in any way. There are some things that science just can't explain in my opinion

Science can splain everything.....even our creation..