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#1 | ||
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Junior Member
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I really want thank all of you for the responses, I literally have tears. I never knew anything about MS and when people spoke about it, I just thought "oh yeah, that disease that puts people in wheel chairs" and I feel so ignorant that I've always had the "will never happen to me" attitude. This has opened my eyes to reality, and for that - I am extremly thankful.
The neuro called today, stated I have MS and cant make an appt for 2 weeks to go in an see him to discuss treatments but he asked if I could go to the hospital today to start steroid treatments for 3 days. I asked to start is next week because I dont know what benefit that will bring me or any knowledge of the side effects so wanted more time to digest. In the meantime I called an MS center in Boston (where I live) who schedules 6 weeks out but I actually got an appt for this Friday due to a last minute cancellation right before I called, so I am looking forward to that and busy writing down questions. Funny thing is is that today I felt very dizzy, nauseaus and off balance a bit. Im sceptical to think that this is all of a sudden and too cooincidental to happen on the day of my diagnosis, so im really confused because I dont know if Ive felt like this for a while and ignored it and passed it off as something else or if it really did just start today - either way its real and im very scared now. Thanks guys for letting me vent and talk about my experience. Trying to find the courage now to tell my boss. Thank you very much again. ![]() |
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#2 | |||
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Magnate
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![]() Welcome to the MS forum, and to NeuroTalk. The people on these forums are great. ![]()
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Mair . |
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#3 | ||
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Junior Member
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Thanks all - Start steroid infusions tomorrow, wish me luck! Im not doing too well emotionally lately - I feel as if Im crying, angry, mad, confused and going through this craze of emotions but yet physically feel fine - I just have a little numbness in my hands...I look back and read my posts and then think to myself "Was that really me that typed that?? Is this all really happening to me??" - Its tough. I put on a very strong front to family/friends and will just cry in the car by myself for now. I really just wish they would stop denying me a spinal tap - I think that will help me accept it more. I look up to every single one of you on here and am now addicted to this site, its like my own little world of friends who "get it"- thank you all again.
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#4 | |||
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Member
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Hi Jodi
I never had a spinal tap. I didn't need to as the other evidence (clinical and MRI) was overwhelming. Your tears, anger and confusion are only to be expected, so don't beat yourself up about it. It is a rite of passage that we have all had to go through. Having said that, visit when you need to, but do not stay in that dark place too long. We don't know where we are going to be in a decade.....but who does? Life is too short for all of us. Enjoy every day as much as you can. Hugs Lyn ![]()
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#5 | ||
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Junior Member
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Jodi.....I am Very confused..? I did Not no they did not do a spinal tap on you..???? I think These days thats "Standard" part of the process...!
Please keep us posted on how you are feeling on the meds etc. You are Not alone with the crying and All the emotions you are having...I too am feeling the same...( i am Very Depressed ) Hugs to you carol |
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#6 | ||
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Junior Member
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Quote:
I hope you feel better too Carol!! Thank you for listening!! ![]() |
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"Thanks for this!" says: | carbreezy (09-05-2012) |
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