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09-06-2012, 12:39 PM
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Senior Member
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Carbreezy,
Count me as another MS'er w no O-bands in my CSF. I hope you don't have it, though. ANN |
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09-06-2012, 12:53 PM
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My first LP I had no o-bands, my second LP I had o-bands. Best to let your neuro do the analysis of that MRI and LP. Good luck to you.
__________________
Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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09-06-2012, 03:13 PM
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Junior Member
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Well...I saw the Specialist Neuro Doc Today...He put me through ALL kinds of testing..!! he Looked at my MRI of Brain and spine - he read my Report..he listened to my symptoms....He Talked with me as we looked at the MRI white spots....and He said "There is No reason to believe you have MS" he went on to explain and show me why. Nothing pointed to MS (per doc).!!
As the report said I do have deep chronic white matter ischemic disease. I am going with that and running...!!!  it is hard to type everything he told me...my retention has always been poor. I do have Hashimoto's - High Cholesterol - in menopause and ADHD... 
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09-06-2012, 03:41 PM
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Im glad for you that you dont have MS!! Im not sure what hashimoto is tho. So, great to hear no MS!! Happy dance
__________________
Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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09-08-2012, 10:12 PM
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#7 | ||
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Junior Member
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I also have no O bands in my CSF and have clinically definite RRMS.
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| "Thanks for this!" says: | carbreezy (09-10-2012) |
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09-09-2012, 11:27 PM
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#8 | ||
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Junior Member
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jacksonsmommy...what did they say that pointed them to the direction to say MS..?
Optic...? Lesions count/placement - size- your symptoms...Other CSF ranges off? memory testing...gait...reflex testing...sensation testing...? there is soo Much testing that needs to be done to rule out other things...or for things to point towards it. also do u get numbness and tingling All the time...? do your meds take that away.. thanks carol |
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09-09-2012, 11:31 PM
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#9 | ||
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Junior Member
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Hi Kitty...did you get copies of your CSF report..?
have you seen your MRI's...? I dont know how to read mine on my laptop. I really want to be able to Look at them on my computer. I have only looked at them twice while at the neuro;s office.... Kitty do u have the Optic Nero..did u do the VEP..? Thanks carol |
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09-10-2012, 07:36 PM
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#10 | ||
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Junior Member
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Hi Carbreezy,
Just wondering if your neuro is in the Detroit Metro area? If so, which clinic? I'm at the MIND clinic at Southfield. Just wondering. Thanks |
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| "Thanks for this!" says: | carbreezy (09-11-2012) |
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