I believe I had an elevated IgG index in my spinal tap paired with no O-bands. So that elevation is considered a marker for MS.

I'm so happy the MS specialist said there was no MS. Yeah!!!!!!

So do they have any idea what is going on????? What symptoms were you having that made you get an MRI in the first place?

..Thanks you guys.

Yes all my levels in CSF were in "Normal range"
( i thought they were perfect} Doc just said they looked Really Good.!!

What started this Whole Journey was i was having this Slight...and i mean slight on and off weird feeling in my left side of my Jaw area ...like a slight Numbness...some days i would notice it and some i did not. When i told my general doc she said "You Gotta go see a Neuro doc for that.!! .. I was like "ok" ...Cool.. I thought maybe i will get an MRI out of the deal..Cause i have Always wanted to see My Brain..!!

at this Neuro doc - I thought i would Lay it all on the line (since i was there)
So i told him How i would get on and off periods of "extreme fatigue" and weakness and Pain....(not all at the same time) !! ..I told him i thought it was from my thyroid or Hashimoto's or Hormones...etc.
He said maybe...but he wanted me to get an MRI to rule out MS.
I freaked out...I Never thought i fit into MS symptoms...! But I played along...I was still excited to get the MRI and See MY brain.!!

MRI comes back...says i have Chronic deep white matter ischemic disease ..and also two highlighted areas seen....!
I go for my follow up and this doc says...you gotta get a spinal tap.
I freaked Out.!! No way - this doc says i have a demylinating disease. I asked if it could be "MS" and he shook his head yes. But he said "thats why you need to get the spinal tap....to help rule it Out.!

i Finally agreed to the spinal...took the results and All my reports to a Different Doc. (different hospital) this New doc is Medical director - Head of Neurology at the MS clinic. He did a very intense testing...( head to toe) etc.
(actually there were 5 lesions not two - like the report stated )
am here i am.... he says Nothing points to MS...( well he talked to me to explain everything - he went over a lot with me...) Very kind.


hope this helps...to understand..

Thanks for the recap, Carbreezy.

What is causing your brain lesions? What does your specialist Neuro think?

I hope whatever is wrong will be something curable and your symptoms will all go away..

congrats on the no MS. what great news.
i hope the future looks bright for you.

Honestly after my first LP, no one ever told me anything about it other than I didnt have any Obands. After my second, same thing, except this time I did have Obands.

I also have no O bands in my CSF and have clinically definite RRMS.

jacksonsmommy...what did they say that pointed them to the direction to say MS..?
Optic...? Lesions count/placement - size- your symptoms...Other CSF ranges off?
memory testing...gait...reflex testing...sensation testing...? there is soo Much testing that needs to be done to rule out other things...or for things to point towards it.

also do u get numbness and tingling All the time...? do your meds take that away..
thanks carol

Hi Kitty...did you get copies of your CSF report..?
have you seen your MRI's...? I dont know how to read mine on my laptop. I really want to be able to Look at them on my computer.

I have only looked at them twice while at the neuro;s office....

Kitty do u have the Optic Nero..did u do the VEP..?
Thanks carol

Hi Carbreezy,

Just wondering if your neuro is in the Detroit Metro area? If so, which clinic? I'm at the MIND clinic at Southfield. Just wondering.

Thanks

...I went first to MI Neurology on Harper - Clinton Twp. They are the one's that when they saw my MRI they said "I had to have a Spinal Tap" they said I had a Demyelination process...and they must get a spinal to help rule out MS.!!

after i got the spinal tap...I took ALL My Report's etc. and went to Henry Ford in Detroit to see DR. Elias ... I felt he was Good.

If he was not ...then My Next step before Mayo was Southfield where you Go.!!
Dr. Rossman. (sp?)

but for Now I am Good. How are you..