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#1 | ||
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Junior Member
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well i just picked up my report on the spinal tap ( CSF tap )
and all levels are in Normal Range..!! ![]() I am in a Happy Shock ..!! I see the New Neuro Doc tomorrow Morning...he is a MS specialist. the Doc that sent me for the spinal tap after looking at my MRI Highlighted Lesions...was convinced it appeared to look like MS... ... i am So Happy and Confused... The only thing that was High was the CSF "Mononuclear Cells"... carol |
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#2 | ||
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Junior Member
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Quote:
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"Thanks for this!" says: | carbreezy (09-05-2012) |
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#3 | ||
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Junior Member
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"Thanks for this!" says: | Jodi2225 (09-05-2012) |
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#4 | |||
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In Remembrance
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Congrats if no MS and pray nothing worse.
![]() Any protein in the Fluid? That's a sign of demylination. That's how I was DXed.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Jodi2225 (09-05-2012) |
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#5 | ||
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Junior Member
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my protein csf is 26 normal range is 15-45
....so 26 looks good to me. |
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"Thanks for this!" says: | SallyC (09-05-2012) |
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#6 | |||
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Member
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When I was diagnosed I had lesions on my brain MRI (with a couple of them enhanced by contrast) and the report stated I had demyelinating disease. I had slight blurry vision in my left eye (still 20/20) and dizziness.
My spinal tap showed no O-bands. I had every blood test imaginable. A few random tests were slightly elevated. I went to the Mayo Clinic for a second opinion. They said yes it was MS, no question. So theoretically you can have MS without the bands. It's not common but it is definitely possible. I remember reading medical journal articles about people with MS and no O-bands. Early on they thought it was indicative of a more mild/benign course but I don't think they believe that anymore. For what it's worth, it's been 5 years and I've had no relapses (knock on wood!). Good luck with your doctor visit!
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On Tysabri and love it. . |
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#7 | |||
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Member
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__________________
. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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#8 | |||
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Member
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I am diagnosed with MS, and had no bands. I am told, however, that my MRI of the brain is classic MS.
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Life really is a bowl full of cherries once you learn how to spit out the pits. |
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#9 | |||
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Member
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I had two lumbar punctures about 6 months apart, because my first neuro screwed up the first one and couldn`t get enough fluid for a proper test.
The second, done under the scope at the Cleveland Clinic was complete, and negative for everything. I was offered a third by the MS specialist that diagnosed me, but he said that even if it was negative again he wouldn`t change his diagnosis. My repeated MRIs, extensive blood and other lab work, neurological exams, and a history of progression gave him enough evidence. Especially since no other explanation could be found.
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ditched the witch . |
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#10 | |||
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Magnate
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Hi carbreezy,
I am happy you are happy ![]() However, it would be a good idea to wait and see what your neuro has to say. There are some diagnosed with MS who have o-bands (me), some who's LP came up negative for o-bands (like you) and some who never had a LP as part of the diagnostic process. I really hope you do not have MS ![]()
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Dx RRMS 1984 |
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