I do not do steroids either....they only help to shorten symptoms (supposedly); but do nothing to slow down MS progression at all. Just my opinion, but they are not worth what they do to our bodies.

Thanks all - I woke up this morning and felt 100 times better, and for the 1st time in 2 months my hands actually felt "slightly" better and my eyes were better so I went for the 2nd infusion to keep it going and not interupt the cycle, the AMAZING nurse sat with me for 30 mins and talked to me about MS etc. I think I took the infusion in too short of a time (hour) and I think im reading too much about this and symptoms etc on the internet and I bought 5 books and an Ipad to keep up with all and ive only been diagnosed for a week - too much info way too soon I should have listened to the advice early on about not reading too much about it on the internet. I just feel like if im not doing something about it all the time then im doing nothing and just letting it progress and theres still so much I dont understand. Again, its very comforting knowing if I run across these problems and have noone to go to, I can come here. Thank you all so much, bless you all.

About finding things on the internet, doctors disagree strongly on whether it is a good idea for us to search for information. When I got my "third" disease seven years ago, the hematologist told me to "look it up on the web", and I did. I think he should have told me what I had earlier, as he suspected it--but it was at an early stage and would not receive treatment at that time....still he should have informed me what my blood tests meant, I had to ask why I always had high platelets.

I would never have known I had porphyria if I had not read about it on this forum's predecessor, a long time ago when I first went on the net. I looked up info, found I fit, and made an appt. with a doctor who was known to test people with porphyria. If I'd had a more desperate porph state, something like being unconscious from it and in the hospital, possibly I might have been diagnosed that way, but short of that, I wouldn't have had the tests, because the disease is rare.
My present doctors all use the internet to find safe/unsafe drugs for me. If I had not been able to tell them about these internet sites, would they have looked? Maybe.
I have had one or two doctors who did say we should not search on the internet.

Bottom line: you have to use discernment, and the more you study a subject the more discernment you will have.

i'm glad you're doing better.
try to take things 1 step at a time. when i was 1st dx'd i had an insatiable appetite for information. i was an RN but knew nothing about MS (a baby nurse).

i takes some time to tease all the info apart and talking to professionals helps.

I come here after years of going primarily to other forums (porphyria and Polycythemia Vera) because I learn more about the nervous systems and its affects, and what helps it, here. Although some of my neural symptoms could be from Porphyria, some could be from my initial DX, Multiple Sclerosis. Doctors cannot separate out this stuff. They depend on me to even start doing it. So if I don't know anything...pfttt! I have never met a doctor who understand both MS and Porphyria--there undoubtedly are some but rare. I may have met a neuro at Mayo who did understand both, but of course I saw him but once as an adjunct to my PV workup. I would have to live in Scottsdale to have constant recourse to him. And he would not be doing anything to help my MS (I think) because I can't take any of the MS drugs. So if I know at all what I am doing, it has to be on my own, which is usually on the internet.
I feel there must be others here with multiple diseases or odd manifestations of diseases and odd combos who MUST rely on their own perceptions. In the case of my third disease, Polycythemia Vera, I would never have known about p32, the drug which knocked down my platelets when I couldn't take chemo for that, if I had not been on an internet forum. No one in any state I have lived or in Maryland where I went to Hopkins knew anything at all about it, except one very old cardiologist who had seen it used long ago when it was more common. I had to ask her about it--in other words, I had to instigate the discussion. Now everyone is happy that I had this and intend to use it more often....but without the internet this would not have happened.