About finding things on the internet, doctors disagree strongly on whether it is a good idea for us to search for information. When I got my "third" disease seven years ago, the hematologist told me to "look it up on the web", and I did. I think he should have told me what I had earlier, as he suspected it--but it was at an early stage and would not receive treatment at that time....still he should have informed me what my blood tests meant, I had to ask why I always had high platelets.

I would never have known I had porphyria if I had not read about it on this forum's predecessor, a long time ago when I first went on the net. I looked up info, found I fit, and made an appt. with a doctor who was known to test people with porphyria. If I'd had a more desperate porph state, something like being unconscious from it and in the hospital, possibly I might have been diagnosed that way, but short of that, I wouldn't have had the tests, because the disease is rare.
My present doctors all use the internet to find safe/unsafe drugs for me. If I had not been able to tell them about these internet sites, would they have looked? Maybe.
I have had one or two doctors who did say we should not search on the internet.

Bottom line: you have to use discernment, and the more you study a subject the more discernment you will have.