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09-11-2012, 01:56 PM
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Grand Magnate
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snoopy had great advice, and wisdom.
i don't think you're stupid, or making things up. you know your body the best so trust in that. it might help to keep a symptom journal with sx's and dates. what does your neuro say?
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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| "Thanks for this!" says: | offinthedistance (09-11-2012) |
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09-11-2012, 05:52 PM
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#2 | ||
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Junior Member
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Thank you both. I know what you told me, I just needed someone to tell me.
I don't have anyone to talk to unfortunately. No neuro appt until 3 months and he's not much use at the best of times anyway. He will probably tell me I was being stupid. |
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09-11-2012, 07:42 PM
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Member
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I just went thru a flare from hell in October. My MRI didnt see any new activity, but my body said otherwise. I couldnt walk, kept falling, blurry vision, etc etc. All my probs have landed in my legs and yet I have no lesions on the spine according to the MRI. My neuro said to ignore that. He said just because they didnt light up on the MRI, doesnt mean they are not there.
Are you seeing a MS specialist or a regular neuro? Sometimes, that can make a world of difference.
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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| "Thanks for this!" says: | offinthedistance (09-15-2012) |
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09-13-2012, 11:43 AM
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Member
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I only have a couple of lesions in my brain, nothing in the spine. I have hand, foot and head pain that show no correlation to the lesions. I've been on Copaxone 6 years and no changes in my MRIs, though my hand and head sx continue to increase in frequency and severity.
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Relax--It only hurts until you die . I'm still walking upright and six feet above ground. . |
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| "Thanks for this!" says: | offinthedistance (09-15-2012) |
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09-14-2012, 01:18 PM
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Member
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I saw my neuro this week, and we discussed MRI's. He explained to me, that the software of the machine and the correct settings for MS are the most important.
His experience has been that even MRI at .3 or .6 Tesla can be better then 3T, if the software is better and the quality of the actual machine. He named them, but I can not recall now. But he said a certain .3 T machine has much better quality then a 1.5 T other brand machine. Can this get any more confusion for us?
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Dx: RRMS Jan 2010; LDN: March 2010-Dec 2010; Aug 2012-Nov 2012 Tysabri: Feb 2011-March 2011 reaction Gilenya: August 2011 reaction Copaxone: October 2011 reaction Tecfidera: May 2013 reaction |
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| "Thanks for this!" says: | offinthedistance (09-15-2012) |
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09-14-2012, 02:51 PM
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Wise Elder
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MRI's are done in slices. The older machines do 1/4" slices. It is very easy to miss a lesion in the 1/4". Additionally, spinal MRI's are difficult because the spinal column is so narrow and packed with lots of other things. It is very easy to miss a lesion in that area, especially if it is not an active lesion.
Snoopy put it in words very well. |
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| "Thanks for this!" says: | daisy.girl (09-15-2012), offinthedistance (09-15-2012) |
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