Hi Catch, sorry you are going through this.

In my experience, which is only my own version of MS, it doesn't sound like MS symptoms nor part of SPMS. Could be and I am just not aware.

I was thinking about the fact that if you have one auto-immune disorder you have a higher chance of having a second than the general population.

Maybe a next step would be to see a Rheumatologist? What does Primary think?
ANN

My GP is scratching her head and sending me for accupuncture. My neuro is ordering an MRI. Rheumatoid Arthritis was supposedly ruled out a few years ago when I was having trouble. And no sign of arthritis or carpal tunnel. I have RSD in my left ankle but it's been in remission for 30 years, and this doesn't act like RSD. I understand what you mean about autoimmune stuff, but I can't find any other dx. What else could it be?

Plus this is like a flare, getting bad a few years ago, then I was fine for a while. Then this year, but much worse, and it seems to come and go getting worse each return trip.

Ahh, Reflex Sympathetic Dystrophy! It occured to me but you aren't injuring these sights are you?

I need to brush up on RSD. In the meantime- I hope acupuncture helps - a good thing to try.

Let us know how things go,
ANN