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Old 09-13-2012, 10:22 AM #1
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First of all welcome to our little corner of the web!
Your questions and concerns brought back many memories for me. I remember all too well the confusion and fear of "what if".

M.S. has a very specific criteria that must be met before a definite diagnosis can be made. Personally for me, the doc's were looking for M.S. for over 10 years before I got a diagnosis. BUT: My symptoms would show up and then pretty much go away. However; I did have this prevailing sensation of off balance that stayed with me most days. I continued to have a clean M.R.I.
Then one day out of the blue my M.R.I. came back with lesions consistent with M.S.

My advice to you is to let the docs go through all there tests to rule out anything that mimics M.S. This can be a long process. When nothing shows up, then you are in the waiting game for things like a positive M.R.I.

There is no good time frame for diagnosis. Its different for everyone. I will say that the day will come that a diagnosis of any kind will feel like a relief. It gets that "monkey feeling" off your back and puts you in a forward motion for treatment options.

I sympathize for where you are in this process right now. Its frustrating and scarey.....but hang in there and don't be afraid. Big Hugs to you and keep in touch to let us know how things are going
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Old 09-13-2012, 10:56 AM #2
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Thank you ladies. I have a lot to learn about MS. I had never thought that to be an option. It has only been a few days since my MRI and I have not been able to stop thinking about anything else. I worry how quickly it will progress and how I will care for my kids, will the kids be more prone to have the disease, how long will i be able to work, i dont want to burden my husband ect. Im gonna guess these are all normal feeling. I already think any diagnoses would be a relief. Im tired of thinking I just clumsy when i drop things, getting so upset with myself over forgetting things, and feeling sick due to the "water in my head" feeling. Most of all finding something that can help with the pain when that comes. I dont know anyone that has dealt with this, so im ignorant to all of it.
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Old 09-13-2012, 11:49 AM #3
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Hi Hismom. I hear you and it is all too familiar. We are with you all the way.

I was DXed at 35 and have had symptoms since age 23/24. I'm now 72 and holding.

Let us know how the MRI results turn out. The MRI alone may not be your DX tool. Often, early in the disease, your MRI may be normal, but other tests down the line will show the MS. I hope the MRI is your answer, though.

Hang in there..
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Old 09-13-2012, 11:03 PM #4
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I had symptoms for over 30 years before I got positive tests. Of course, I had never had anything like Visual Evoked Response, Visual Fields, or MRI before that dx time. I don't know if this was because they didn't have those tests before that? I don't remember when they invented MRI or VER. My parents suspected me of having MS when I got my first symptoms as a teen, but the doctor they sent me to found nothing. I think testing was primitive in those days. At least testing is not as primitive now. But we still don't have much in the way of cure. I am on the Swank diet, my best helper, ever since dx.
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Old 09-13-2012, 11:47 PM #5
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I welcome you to our little corner of the world also. Just like every grain of sand and every snow flake is different, every case of MS is different. It all has to do with where the MS lesions are. Some of us with MS have worked a good while, some have gotten pregnant, raised their kids, some have gotten PHDs while with MS, some have ended in wheel chairs but are very happy. Some have had mates leave them. My husband says I married you in sickness and in health. You will find everything here. Also go over to the Stumble Inn for fun.

Some of the responders here have said it has taken them years for diagnosis. My neuro gave me a diagnosis of clinically probable MS because although every other test and physical symptom showed MS, I only had one lesion. MS is multiple. She gives me the same kind of treatment she would her other patients.
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Old 09-14-2012, 05:58 AM #6
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every thing you describe is absolutely normal for anyone on the hunt for an answer - we have pretty much all been there.

I hope it helps to know there are no silly feelings, dumb questions & that you are not alone on this journey~
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Old 09-14-2012, 09:54 AM #7
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i am starting to calm down since joining this forum really. it is great to know there are lots of people who have been in my shoes, and understand my feelings. I went into the neuro doc for nerve testing...expecting to hear "yep that nerve has slipped lets do a quick surgery to fix that problem" (at least that was how my regular doc figured it would go) When the neuro doc said MS and go for an MIR right now I was floored! I feel horrible because my husband was on a work trip and had to come home due to my anxiety. I dont think he understands the thoughts that are running through my head right now. If this MRI doesnt show anything im scared of the other testing...because I dont know what to expect.
I like that i can get on here and just ramble my feelings/fears
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