Thanks all
This week i have an appointment with my neurolist. I'll take my mom with me, because I'll probably wont be able to say a thing (cry sooooo easily these days hehe).
I already told 6 of my doctors these side effects which I consider to be severe and unacceptable. Some say, I don't know. The others say, yes but is good for your illnesses, and thats that.
Anyway, this week an appontment, and ill ask for the 4th to please, please try the new and expensieve treatment. Its a pitty the just dont understand my sie effects.
Thanks again you foryou support, specially giinny, thanks so much.

I understand feeling crazy with Prednisone. I felt crazy on only 15 mg, which is what they started me on for Pericarditis (fluid in heart sac). I pounded the car window when my husband was driving. I pounded the wall in the house. I was desperate, as you are. Later I found I had Porphyria and Prednisone drives porphs crazy. I can take Cortisone, but not Prednisone.
I see you have several illnesses, which makes it so hard.
You asked if my condition (mental) went away after stopping. Yes it went away within a day after I stopped.
I can't take anti-depressant either, but most people can.
I wish you could go to Mayo as someone suggested. I went to Mayo Scottsdale for another illness (I too have three major illnesses) and they did give me help which no one anywhere else could do--that is, they gave me a treatment which is not available elsewhere. It didn't cure me but it helped my severe painful neuropathy, for which I can take no drugs. The neuro there was the nicest, smartest one I have met. And of course they do have you looked over by other specialties. I hope you can go to such a place.