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Old 09-29-2012, 10:29 PM #1
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i literally can't walk anymore. i have to go to bed. over the yrs i've learned to recognize the s&s (signs & symptoms) of impending depletion and have gotten better at intervening and not pushing past my limits.

i'm glad you'll be seeing your dr. even without a dx your dr may be able to tx your sx's.

dx = diagnosis
tx = treatment
sx = symptoms
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Old 09-29-2012, 11:31 PM #2
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With my fatigue I have no choice but to go to bed. My body has made the decision for me. When I am really really fatigues I want to lay on the floor. It makes me feel more fatigues to think of sitting on a chair. I don't know how many times at church or in a doctors office I have wanted to lay down on the floor. Just thiking about bathing, dressing, any household activities makes me even tireder. I was so glad I had a battery operated toothbrush the other day cause I don't thik I could have brushed my teeth. I don't have severe fatugie any more but I have read past threads or emails from me that the thought content is so vague. I have hung up the phone becuae I can't hold a conversation. now almost all of this is in the past. I don't even take any mdedicine for it anymore.
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Old 09-30-2012, 05:37 PM #3
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I've used a chair to sit on while loading and unloading the clothes dryer and the dish washer for many years (18?) Now I use my late husband's wheelchair to do these chores,
and many others, because I can't squat without either snapping my knees or falling over.
Making the bed is a big problem in case I get my back out. If I get my back out, it's time for PT and chiropractor.
I have found that when I am terribly fatigued I must just stop doing anything that requires focus. I can still watch TV without trying to focus on what's being said, or watch the internet without caring a lot about what they are saying...just goofing off. Or if I need extra sleep, just go take it.
I usually try to suggest Swank diet to people with MS, as it makes a difference to me over the last 25 years. I recently posted about losing balance more than ever before--and since then I have cut out of my diet any saturated fat I can, in conformance with Swank diet, and I believe that once again it helped, and it might especially help if you have circulatory problems. Read Roy Swank M.D.'s book, at least. Also do you take a good vitamin supplement? It doesn't cure anything but if I didn't take it I would be without the juice to continue operation of the body. I take Megafoods multivitamin without iron, plus other vitamins and minerals.
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Old 09-30-2012, 06:05 PM #4
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I know some docs suggest "maybe you're depressed & the fatigue is from that".
But I've experienced that & MS fatigue is like running into a concrete wall-you just can't push through it.
Hope you get some treatment for it, because I know it stinks to feel as if you have molasses running through your veins...
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Old 10-01-2012, 06:48 AM #5
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Hi SD

I remember you well from the anuerysm forum. I don't spend much time there anymore, as there is very little activity there these days. That is a shame, because the experience, support and wisdom that we had to share was pretty special. Not just in the lead up, but you as much as (and more so than many - me included) had a lot of knowledge and advice for those who had been through clipping and coiling brain surgery - and really understood what a long recovery it is. I like to think we made things easier for a lot of people going through this scary nightmare.

Having had a craniotomy and aneurysm clipping myself (although not as traumatic as yours was, from what you have told us) I recall only too well the kind of fatigue I went through after that. I was diagnosed with MS two years before finding my aneurysm, so I have experienced both types of fatigue - separately, and together.

It is a similar kind of bone crushing, devastating, mind-blowing exhaustion to that which I get with MS. Differences? Well, after the aneurysm, I had lots of trouble finding words, memory loss was distinct, and with both, I have that crazy sense of panic that I know I should know something and it won't come. I vividly recall (and on rare occasion still feel) that sensory shut down when there is too much sensory stimuli.

The similarities are no surprise, since it is all to do with the brain, the mechanism that powers everything, and makes us who we are.

I so hope that you are able to find some answers to the things that are causing you to feel the way you are. You have helped others, I hope that we can do the same for you.

Lyn
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Old 10-16-2012, 06:51 AM #6
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Hi again SD Fencer

We haven't heard from you in a while - just checking in to make sure you are going Ok.

Lyn
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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