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Last week I had a horrible allergic reaction to my copaxone shot. Told neuro Im not taking it anymore, he agreed. Said its not worth it and appearantly not working for me. He won't rx LDN for me, as he says LDN won't stop the MS. I said, "Well no &!#$%, NOTHING is going to stop the MS!" He wants to talk to me about BG-12 and Augebie (sp???). I said I didnt want to be on anymore dmd's and I was told "you have to be on a dmd". My response, "The only things in life I HAVE to do is stay white and die!" He said,"Keep an open mind". Ok, mind open. Now I seem to have developed a UTI. More pills! I have a mini pharmacy going on already between the maintenance meds, vitamins, etc, now Ive got antibiotics too! So between popping pills every few hours, and all the break thru pain from spasms, not to mention the nerve pain which neuro wont rx me anything to help control that, the drop foot(which I cant get an AFO because I cant afford it) Im going crazy!! Ive had MS for a long time, but it really attacked hard last year for the first time and it wont let go! It wont stop. Im frustrated, angry, scared, panicked, etc. The song "They're coming to take me away ha ha he he" keeps running thru my head. How true it feels sometimes
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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