Home Menu

Site Navigation



NeuroTalk Support Groups > > >

New dmd

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 10-20-2012, 06:54 PM #1
KittyLady's Avatar
KittyLady KittyLady is offline
Member
  
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default New dmd
My neuro wants me to start Aubagio. Anyone taking that or know someone taking it? Im really hesitant to try it, but wanted some input before I make a final decision.
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
Old 10-20-2012, 06:57 PM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
Here's what the FDA says about it:

http://www.fda.gov/NewsEvents/Newsro.../ucm319277.htm

This link tells more about the drug:

https://www.aubagio.com/
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (10-22-2012), SallyC (10-20-2012)
Old 10-20-2012, 08:11 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
KL, does your Neuro have anyone else on it? Has he been following how others are doing on it. I would look to your Doc to protect you from anything that may harm you.

Good luck if you decide to take this med and I wish you only good results.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (10-22-2012)
Old 10-20-2012, 11:47 PM #4
doydie's Avatar
doydie doydie is offline
Elder
  
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
doydie doydie is offline
Elder
doydie's Avatar
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
Default
I am curious as to the cost vs other DMD and also the hair loss
__________________

.
doydie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (10-22-2012)
Old 10-21-2012, 05:00 AM #5
Erika Erika is offline
Senior Member
  
Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
Erika Erika is offline
Senior Member
 
Join Date: May 2012
Location: Canada
Posts: 1,647
10 yr Member
Default
Have tried searching, nut no luck...What does DMD refer to?
Thanks.

With love, Erika
Erika is offline   Reply With QuoteReply With Quote
Old 10-21-2012, 08:46 AM #6
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
Quote:
Originally Posted by Erika View Post
Have tried searching, nut no luck...What does DMD refer to?
Disease Modifying Drug
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Erika (10-21-2012)
Old 10-22-2012, 10:40 AM #7
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
  
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default
I am afraid to take any drug that affects my major organs or is a threat to getting cancer...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (10-22-2012), SallyC (10-22-2012)
Old 10-22-2012, 10:50 AM #8
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
I'd be more apt to try something if it didn't have such major side effects. Sometimes I can't understand the benefit of it when it potentially causes so many other problems.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KittyLady (10-22-2012), Natalie8 (10-23-2012), SallyC (10-22-2012)
Old 10-22-2012, 11:47 AM #9
KittyLady's Avatar
KittyLady KittyLady is offline
Member
  
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default
I hear BG-12 is much safer to take but isnt FDA approved yet. I would try that one, I told neuro put me on LDN until BG-12 comes out, but now he wants an office visit. I know what that means.... he will badger me until I give in to aubagio. I dont like this. My dh said I better get on some MS med or I could lose my SSDI. Im so confused and upset by everything, my heads spinning.
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (10-22-2012), Natalie8 (10-23-2012), SallyC (10-22-2012)
Old 10-22-2012, 11:50 AM #10
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
You can't lose your SSDI because you aren't on a DMD. He's just using a scare tactic. What about those who can't take them because of allergic reactions?
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (10-22-2012), SallyC (10-22-2012)
Reply
Page 1 of 2 1 2

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 04:35 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home