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#1 | |||
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Member
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My neuro wants me to start Aubagio. Anyone taking that or know someone taking it? Im really hesitant to try it, but wanted some input before I make a final decision.
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Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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#2 | |||
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Wisest Elder Ever
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Here's what the FDA says about it:
http://www.fda.gov/NewsEvents/Newsro.../ucm319277.htm This link tells more about the drug: https://www.aubagio.com/
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#3 | |||
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In Remembrance
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KL, does your Neuro have anyone else on it? Has he been following how others are doing on it. I would look to your Doc to protect you from anything that may harm you.
Good luck if you decide to take this med and I wish you only good results. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | KittyLady (10-22-2012) |
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#4 | |||
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Elder
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I am curious as to the cost vs other DMD and also the hair loss
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"Thanks for this!" says: | KittyLady (10-22-2012) |
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#5 | ||
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Senior Member
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Have tried searching, nut no luck...What does DMD refer to?
Thanks. With love, Erika |
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#6 | |||
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Wisest Elder Ever
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Disease Modifying Drug
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | Erika (10-21-2012) |
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#7 | |||
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Elder
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I am afraid to take any drug that affects my major organs or is a threat to getting cancer...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#8 | |||
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Wisest Elder Ever
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I'd be more apt to try something if it didn't have such major side effects. Sometimes I can't understand the benefit of it when it potentially causes so many other problems.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#9 | |||
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Member
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I hear BG-12 is much safer to take but isnt FDA approved yet. I would try that one, I told neuro put me on LDN until BG-12 comes out, but now he wants an office visit. I know what that means.... he will badger me until I give in to aubagio. I dont like this. My dh said I better get on some MS med or I could lose my SSDI. Im so confused and upset by everything, my heads spinning.
__________________
Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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#10 | |||
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Wisest Elder Ever
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You can't lose your SSDI because you aren't on a DMD. He's just using a scare tactic. What about those who can't take them because of allergic reactions?
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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