seems no one has. which makes me feel crazy or something.... like some huge joke the universe is playing on me... no wonder I am scared out of my mind.

Sorry, still feel so alone in all this... so scared. thought i might hear something reaffitrming, esp w/ 100 people viewing this thread.

Hi there

I am sorry that you are having such a miserable time, and that you are so scared and lonely (which, from what you have said, is completely understandable).

I have had MS for eleven years, and I started with an aggressive course (though not near as much as yours). I started on Interferons straight away, and that helped considerably. I have been on Tysabri for three-and-a-half years, and it has worked really well for me, with no relapses in that time.

I am also JC+ which is scary in itself, but it is a question of weighing up the odds - and to me, it is worth it (but that was just my opinion).

Good luck, I hope this is good for you. Please don't expect instant miracles, but hopefully it will be as good for you as it was for me.

Regards

Lyn

So glad so many people can read my post, but no one can be bothered to reply or offer me anything based on their experiences. Further proof of my fear that this disease has made me selfish, because apparently, everyone with MS or works in treating MS are selfish too.

Oh well you can't win them all. I hope your course of your illness lightens up for you soon Scrap.

You could be a little easier on yourself and others. We are only Peeps with a disease, struggling along, just like you, here to support each other through the tougher times, but in no way, experts on your particular type of MS. We all have a different course of this carp.

Please be well..

My niece presented with behavioral symptoms. She also smokes. She has had a hard time with MS. I would highly suggest that you quit smoking if you can to see if it helps but I know that is easier said than done.

I read your post but I hesitated to respond because you reminded me of my niece in your description and I didn't want to make you think that it would be your situation just because it looked similar to me. This is a very complex disease.

You'll get better replies and responses here if you are polite and treat others with respect. This is a supportive community but we aren't all on here, all the time. These are nice people and they deserve respect and they all have the same illness to one degree or another.

I am sorry I am tired and frustrated by all this. I went to bed one night, and the next day my entire life was gone. I have been through hell, and all I wanted was a little support, for someone to say they had been through something like this and had gotten better. I need time to experience life before this disease takes everything... I need to believe that this relapse is going to go into remission and that I will have a chance to live life a little longer. Instead I keep getting slapped in the face. I thought that by reaching out for support I would have gotten something that could of been construed as supportive. I know my experience is rare, and I am thankful others haven't had to go through this.... but this diagnosis was just sinking in when this attack happened, so excuse me for being shocked and angry this may be my life now... I was told by my former neuro that this could be as manageable as diabetes... I knew that was wrong, but I thought I would have longer than 2 1/2 months before i was facing permanent disability.