Been on Ampyra for over a year. It helped my balance and walking ability within a week. Now I'm seeing a chiropractor. His manipulations helped my walking right away! I was walking almost normally for a while. It is still way better and I'm wondering if I can do without the med. The thread about treating MS naturally is what prompted me to try this; I'd been thinking about it for a while.

I was taking Ampyra twice a day. Yesterday morning I took my usual pills but not the Ampyra. Same with my bedtime pills.

My BF woke me up a few times because I was twitching. He often does more than twitch - he flops around, kicks, and punches! But I can gently rub his back or arm and he'll go into a deeper sleep (sometimes). So he tried this on me.

Normally I sleep motionless all night, only waking to roll over maybe once if there's not a cat on or against me. I remember BF waking me twice because of the twitching last night, the second time we talked about stuff for a while and I had a hard time getting fully back to sleep.

So, was the twitching due to the lack of Ampyra? I might find out tonight. Or not. I'm about to take Rosie for our morning 4/10ths of a mile jog. Will keep you apprised of my walkability!

Interesting. I'm still waiting for my prescription to arrive. I'm hoping it will help my walking which has gotten progressively worse over the past year. It'll be interesting to see how stopping it affects you.

maybe you should only cut the med by half the dose for a wk or so.
then try stopping. i'm not a dr so you should ask yours.

hope it all works out for you.

Agreeing with Nurse Nancy. I'm hoping you did check with your doc before abruptly stopping a med.

I am interested in your experiment w a caution. It is always good to be kind to your body and withdraw very gently from anything that it usually gets regularly- even things that are not labeled to need such care.

ANN

You guys are all correct, of course. I should check with my Dr before playing around with my meds. To be honest, I didn't think about it. I forgot - didn't give it a thought. I forget that my Drs here are actually interested in my condition. Unlike the loser Drs in Mississippi.

With that said, I did my a half mile jog with Rosie today, no problems. Worked in the garage going through boxes for a couple hours, no problems.

Seems like maybe my foot drop is worse.