[KittyLady]

I have been in so much pain lately, my neuro says its nerve pain. He has now added to my already long ( to me) list of meds Topomax. Hes increasing me from 25mg to 200mg a day over the course of 4 weeks. I know nobody likes a pity party, but Ive been on 3 new meds and none of them seem to be working. I hope topomax will work, but this waiting to see stuff is still leaving me in so much pain. The other nite I seriously told my dh I just wanted to end it all if this is what my life is going to be like. But thank God and all the saints dh was there to say, "but I love you, and think of the grand babies, they love you too!" What a way to snap me back into reality and continue fighting!

QUESTION??? Does anyone else take topomax for nerve pain and does it do anything for you?

[SallyC]

Originally Posted by KittyLady

I have been in so much pain lately, my neuro says its nerve pain. He has now added to my already long ( to me) list of meds Topomax. Hes increasing me from 25mg to 200mg a day over the course of 4 weeks. I know nobody likes a pity party, but Ive been on 3 new meds and none of them seem to be working. I hope topomax will work, but this waiting to see stuff is still leaving me in so much pain. The other nite I seriously told my dh I just wanted to end it all if this is what my life is going to be like. But thank God and all the saints dh was there to say, "but I love you, and think of the grand babies, they love you too!" What a way to snap me back into reality and continue fighting!

Way to go!!!!!

[Debbie D]

So your pain is the stabbing kind? I used to take gabapentin (neuron tin) for this pain. I had too many side effects from it so I stopped it and just put up with the neuropathic pain, since I don't experience it often. The type of pain I experience is from spasticity. Ugh...

[wingsscrub]

Originally Posted by KittyLady

QUESTION??? Does anyone else take topomax for nerve pain and does it do anything for you?

I haven't been prescribed Topamax for nerve pain (although I suspect I've got some now). I've been put on it for my tremor and migraines. I'm still on a baby dose because if there's a side effect, I tend to have it. I am quite sensitive to new meds.

So far I find my appetite is a bit suppressed, fizzy drinks taste super weird (to the point where I don't drink them anymore) and every now and again I get nauseous for no good reason?

It does seem to have helped my tremor though...

Keep us posted.

[Lynn]

Hi Kitty

I was prescribed Topamax for nerve pain (burning and such) and also because all my 'messages' were getting totally scrambled and my legs were just giving way and I was falling way too often.

I am only on a relatively low dose, I haven't had an 'MS fall' since starting the med, and I have only had one or two sleepless nights with burning legs/feet since I started it.

I so hope that this works for you - I know it is also prescribed for migraine (and, I think) for post-herpetic neuralgia for shingles pain as well as epilepsy.

Good luck and let us know how it goes.

xx

[KittyLady]

So far, the nerve pain seems to be quieting down alittle. Still have some but not nearly as bad. My appetite is pretty much gone. Im lucky if I eat one item a day, and drink one bottle of water a day. I have just lost all interest in eating and drinking. If I force fluids, I get nausea and vomit, so I dont force it any more. My tremors are getting worse, and my hand writing has gone from a 42yrs old to a 1st or 2nd graders. DH is panicing, me, Im like whatever, its just the MS. I talked to the pharmacist about the loss of appatite and not drinking and she said it was the topamax, so Im not real worried. Hey, maybe I;ll finally lose those extra pounds.. hehe!! (gotta find humor where I can folks!)