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-   -   It's back.. worse than before. (https://www.neurotalk.org/multiple-sclerosis/180958-worse.html)

AynaDee 12-19-2012 11:58 AM

Quote:

Originally Posted by tkrik (Post 940493)
I'm sorry you are going through a tough exacerbation. I'm glad to hear you are doing a little better.

Steroids make me feel awful! It takes a good week or more after to start feeling human again. They do increase my fatigue and just make me feel ill. It sounds like you are going through something similar. By chance, is it possible you had some sort of virus or infection before starting the steroids? The combination of an illness and steroids can make you feel more fatigued and ill. That only happened to me once.

Getting some sort of state assistance will help. It will definitely take some of the stress of medical bills off your shoulders.

I agree with Judy. Discuss getting SSDI with your doctor(s). The more support you have from your medical team, the greater your chances of receiving SSDI. Talking with a lawyer will help as well.

Again, I hope you start feeling better soon. Let us know how you are doing.:hug:

would a tooth infection count?
Right before my eyes got bad my back moler started to kill, but then my vision got so out of hand that I loss focus on the tooth..
Needs removed asap... But can that even be possible while on steroids, since it shuts down immunity??

azoyizes 12-19-2012 12:38 PM

I am so very sorry you are going through so much! :hug:

Did you hire a disability lawyer when you applied for it the last time? That's what I had to end up doing, and it worked.

IVSM is so strange, especially the side effects. When I get it, I totally lose my appetite and I can barely stay awake.

I hope it works for you!

AynaDee 12-20-2012 01:53 PM

Quote:

Originally Posted by azoyizes (Post 940786)
I am so very sorry you are going through so much! :hug:

Did you hire a disability lawyer when you applied for it the last time? That's what I had to end up doing, and it worked.

IVSM is so strange, especially the side effects. When I get it, I totally lose my appetite and I can barely stay awake.

I hope it works for you!

I did get an attorney last time.. He did nothing, even at the hearing I did all the representation. I feel this time, I should do it all by myself. I was denied last time at the hearing because I made 100 over the limit the last 3 months of the year.. Now I am out of work til eyes get better and when they return I will only be allowing myself 15 measly hours a week..
I wish we could at least charge MS rent for using our bodies :cool:

Erika 12-20-2012 04:03 PM

Aw, that's a tough one to have this stupid disease AND have to fight for assistance! Gee whiz:(.

Hoping and praying that things work out for you.

With love, Erika

Mariel 12-22-2012 04:12 PM

My lawyer was mostly useless. Social Security refused to pay her entire cut of the proceeds when I finally got disability 3 years after starting my quest for it. I had to do most of the work. She almost missed a deadline. My records were lost and my congressman had to find them (twice). I learned my lesson not to trust the MS group (I forget which one it was, the big one), because I informed them of my misery and they still had this lawyer as a speaker at gatherings. Good thing I had my husband to live off of while I tried to get Social Security. I fought hard to get this disability, perhaps would have been better off living on my husband's salary and then retirement, but I was determined to have justice. I got my private disability (through work) the very day I applied for it, and had a physiatrist study of my capacity, which the physiatrist said was so bad that I could not work at anything, let alone teach in front of 90 students a day. I was at a low when the physiatrist tested me and could hardly lift two towels from one table to another. But my abilities improved after going on the Swank diet for a while, and not being under the extreme stress of work; but of course I could hardly make out the SSA forms because of eye-hand coordination problems, even when I had improved. Later my eyes improved completely, although hands still weak.

I hate the system. They say there are cheaters, but I wasn't one of them, and I fought to get it!

AynaDee 12-26-2012 01:13 PM

I hope everyone had a wonderful Christmas!

I am still out of work. My eyesight is not double anymore however it still takes a second, when moving my eyes from side to side, to see things properly in forward view, still gettin a lil dizzy, and behind my eyes still are very painful.. It kinda feels like my optic nerve is going to snap when I move my eyes. I am finishing my prednisone taper today..

I guess I still dont understand ms, thought FOR SURE my eyesight would be back to normal by now... Sigh...


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