Yep, I can be shivvering with goosebumps and yet perspiring at the same time.

It's just our whacky MS body thermostat.

Kristie- I am often warm w cold hands and feet. Even icy hands and feet under a heating blanket.

It is the one thing that I had heard many CCSVI patients say got better immediately. I am not willing to do that just yet.

I do agree w Sally that we have wacked thermostats!
ANN

Yeah, I'm not willing to try that just yet either.

I don't mean warm with cold hands and feet, sorry you're dealing with that though. I mean sweating all over with goosebumps all over. It's extremely uncomfortable, but knowing that I'm not just crazy at least on this, helps a little. I'll talk to my neuro in January to let her know.

Thank you both for the help!

Please get back to us w what the neuro says.
ANN

Wow, fail on my part! I never did tell you what she said. Sorry.

She basically brushed it off as hormonal, like hot flashes and things like that. I don't think I was able to describe it to her well enough. I think she thought it was hot then cold flashes, not both at the same time.

So still no answer here. Sorry for all who deal with issues like this, they suck.

I have moved on to having full on hot flashes too. Those are just as bad as the hot and cold feeling.

Hope you all find some relief!

I'm opposite of Erika. I have to have the heat up to 72 at least, at night, to help with jerking of my limbs and back. If I am too cold they jerk more. And of course I cannot wear any nighties any more because of itchy skin from Polycythemia Vera (have not found a fabric which works at night, although I do have ones which work by day). I usually sleep with the covers pulled way down, and the heat up.
This does not mean I like summer heat! I'm comfy at 72 but when it goes up to the real summer heat, like over 80 or 90, it isn't good.
The itch is driving me nuts at night--I often have to get up and drink more water or tea and watch something on the computer, because it distracts from the itch. People with PV usually have this itch and it is a major major symptom, hard to deal with, even with tons of body cream. I use only the purest body cream from the Health Store, read all labels.
It is exacerbated by the very very dry climate here, the dangerous drought we are in. Even an excellent humidifier does not do the whole job.

That's a bummer! I have gotten to where my clothes feel like sandpaper lately, even really soft clothes. Tag-less clothing has become a must, so glad this waited until that became popular.

I found a pair of workout pants today that feel ridiculously soft. If they work for me I will let you know to see if it's something you've tried, or something that might be worth a shot if you want.