So has anyone else felt hot AND cold at the same time. I mean sweating and freezing all at once without any fever. I have been having this feeling every night at bedtime. It makes it very difficult to get to sleep

If anyone has dealt with this, do you have any idea of something I can do to help with it?

Thanks for any advise.
Kristie

Yep, I can be shivvering with goosebumps and yet perspiring at the same time.

It's just our whacky MS body thermostat.

Kristie- I am often warm w cold hands and feet. Even icy hands and feet under a heating blanket.

It is the one thing that I had heard many CCSVI patients say got better immediately. I am not willing to do that just yet.

I do agree w Sally that we have wacked thermostats!
ANN

Yeah, I'm not willing to try that just yet either.

I don't mean warm with cold hands and feet, sorry you're dealing with that though. I mean sweating all over with goosebumps all over. It's extremely uncomfortable, but knowing that I'm not just crazy at least on this, helps a little. I'll talk to my neuro in January to let her know.

Thank you both for the help!

Please get back to us w what the neuro says.
ANN

I am also freezing and so hot that I am sweating. Then when I am sleeping I can go from too hot under . . anything to freezing. This happens all night and all day, and has been going on for about a week. I am very tired now, and I know what waits for me tonight.

Oh yeah...the MS thermostat thing. We all seem to have our own version. My extremities can be cold and perspiring while the body is overly warm. I think that some of it is a stress response affecting metabolic rate. I've noticed that my BP and pulse rate are often very low when that is going on.

The body can be cold all over before bed and then a few minutes after laying down, off come some of the covers.
Epsom salt baths tend to even things out for me for a short term fix.

I also take coconut oil and that too seems to help in keeping the extremities warm. It does increase the metabolic rate, so if the body is already too hot, removing some clothes is the trade off.

I also keep my furnace thermostat below 60 F, because if it is any higher than that, body temp regulation issues and MS symptoms are worse. Even in the depths of winter with outdoor temps well below freezing here, my front door is often partially open and the furnace is turned way down.
The thermostat shows that it is 54 F in my living room right now, the door is open and I'm still warm.
Weird.

With love, Erika

My body thermostat is usually too low. I don't like taking showers because the hot water always runs out too soon. I like summer much, much better.

Wow, fail on my part! I never did tell you what she said. Sorry.

She basically brushed it off as hormonal, like hot flashes and things like that. I don't think I was able to describe it to her well enough. I think she thought it was hot then cold flashes, not both at the same time.

So still no answer here. Sorry for all who deal with issues like this, they suck.

I have moved on to having full on hot flashes too. Those are just as bad as the hot and cold feeling.

Hope you all find some relief!

I'm opposite of Erika. I have to have the heat up to 72 at least, at night, to help with jerking of my limbs and back. If I am too cold they jerk more. And of course I cannot wear any nighties any more because of itchy skin from Polycythemia Vera (have not found a fabric which works at night, although I do have ones which work by day). I usually sleep with the covers pulled way down, and the heat up.
This does not mean I like summer heat! I'm comfy at 72 but when it goes up to the real summer heat, like over 80 or 90, it isn't good.
The itch is driving me nuts at night--I often have to get up and drink more water or tea and watch something on the computer, because it distracts from the itch. People with PV usually have this itch and it is a major major symptom, hard to deal with, even with tons of body cream. I use only the purest body cream from the Health Store, read all labels.
It is exacerbated by the very very dry climate here, the dangerous drought we are in. Even an excellent humidifier does not do the whole job.