Okay so that's the same thing they did with the brain MRI. I will request it when I go back this Tuesday. Does my story seem like MS is likely? I know it's very different for everyone but I'm just looking for some guidance. Personal I suspect it.

Ok that MRI you had of the neck is the MRI of the spinal cord. and the LP is not that bad. they numb you and you just feel pressure and as long as they have you lay down for about 4 hrs afterwards you should be fine. Mines was not that bad, I got a headache but mostly from moving around a bit trying to get the right postion.

Just calm down and take it all one day at a time. I don't know I am so use to being in pain since I was 10 yrs old that maybe I am taking all this a little calmer. you need to rest when he rest and make sure you stretch when you can just a little. they are getting ready to send me back to physical therapy and this time I am really planning on carrying on the exericse they give me because I can not stand this waist I have my stomach is getting too big.

running after my grands when they come over, I know how hard it can be with the children but you start training how to help you. You will be a great mother no matter what you have. motherhood is not all about what you can do phyiscally.
I know you are scared and I went through somewhat what you are going through and I never thought it was all going to stop but it did after the steroid infusion and I had my break and I think it is starting again with little things. I know I am a newbie and there are people on here that have been living with this disease for yrs and they can better tell you in the long run how it was for them.

Hey everybody! I wanted to up date you all on my latest MRI. I hope nobody minds me posting and not having a diagnosis. So my newest MRI done earlier this week showed two spots of white matter. They didn't use the word lesion. However these "white matter" were not present 5 months ago. The nurse said they are typical of people with migraines which was odd because I have told my nuero I NEVER get migraines. They left it at that and told me to check back in a few months. Should I be concerned about this? I mean I feel this is probably what is going on with me because I can relate to almost everything I'm reading here. I have symptoms that come and go but my leg problems are progressing and not letting up. Is this typical? I know everyone is different but if anyone is kind enough to share a personal experience you think I could relate to that would be appreciated. I'm terrified I won't be able to walk soon if these keeps getting worse. I mean what do they need to see from me to give me any kind of diagnosis? I just don't understand. Yesterday I found this out and since then I feel so uncoordinated. My arms are here but there not if that makes sense. I have to think about moving them (much like I do daily with my legs). Please if anyone has a comment I would be more than grateful to read it...Thank you!!!

KF, either call your Doc and ask for an appointment to discuss your MRI and what next for you or get another opinion. Your PCP should be able to refer you to another Neuro.

Good wishes and luck..

KittyLady - I'm so sorry you are experiencing that as well. Annoying to slightly painful is how I would describe it. I did tell the NP at the neuro's office when I saw her. She just looked at me like I just described something so off the wall. I told her it was like a pager going off in that area. She just chalked it up to some sort of sensory symptom.

And, as far as I know, there is no stopping it. The only thing that came close was using an ice pack in that area. Hey, I was getting desparate and had to try something.

I hope it goes away soon.

Hello Faith, and welcome!

Like you, I was afraid that if my numbness kept spreading that I wouldn't be able to walk. And my left arm/hand didn't have any more strength than one of those "claw" machines that take your quarters.

Steroids helped, but I really think that the symptoms were beginning to go away on their own by then (about a week after first sx).

It was several months before I got my full strength and energy back.

Not sure if I actually have MS, but the flare about 6 years ago was very MS-like. I hope you are able to get some answers. Best wishes and feel free to post anywhere and anytime. Lots of good folks around here.


Ooops! Sorry KittyLady! I got lost in the posts and didn't realize you began the thread. Sorry about your vibrations. Stuff like that is really unnerving. Hope it goes away soon.

Oh, and excellent analogy to help your husband understand better! *applause*

Thank you so much for sharing! I'm glad to hear it eventually got better. Some days are okay and others are ugh. But I'm trying to just stay positive and not think the worst. Reading on here helps with that! So many good and positive people here!