Wow, thanks so much for the support. Ive been working all day. So much pain and my joints are killing me. I read the articles and I have a feeling this may be the cause. Possibly the Cipro. Im afraid no one will believe me. I will print these pages up and bring them to the neuro. My knees hurt so much. Im afraid I will be brushed off. Im not a very good advocate for myself.

Would the MRI"s show any possible damage regardless of what its from? I appreciate all who responded. Im going to rest now. And tomorrow will write down all that has occurred since taking these meds. Ill def let you know about my appt. God Bless.

I am sorry that you are having all these problems. If you are not a good advocate for yourself, do you have someone that is and if so can you take them with you to your neuro appointment? My ex was not good at communicating with her doctors so I went to most of her appointments to let them know what was happening with her and get her the help she needed.

I have no family history of MS either but here I am being the ground breaker.

Hello all, thanks so much for your support.

Last week, my GP put me in touch with a rheumy.
I told her about the tingling in my left and extreme muscle and joint pain.

She did a zillion tests, no results yet. ANA, hepatitis, really strange mix of tests.

She put me on Nitripoline(sp?), 10mg, for the pain. Doesnt help. But I see the neurologist in March. Im happy she is checking for Autoimmune issues. My GP did the RA test, and it came back negative, don't know the number though.

I still have the awful arm pain, biceps, triceps, forearm pain, and knee cracking pain every day. It's awful when I wake up. It wakes me up. It seems the rheumy was concentrating on the neuropathy and not my muscle pain, which is worse.

I think I might have Raynaud's disorder. Where I work is cold on Sunday am, due to little heat. It was about 58 in there and after a few hours, my right hand fingers were in so much pain. tingling pain. and it hurt to touch metal. They turned whiter than normal. It hurt to use a pen or do anything. I had to put gloves on. I only got relief by coming home and taking a bath.

I know there is something amiss in my body. I can live with the left foot tingles, but not this myalgia pain.

I dont know what I will do should the tests come back negative....

Also, Ive had a lot of bloodwork done, and on every lab sheet, MY EOS is always
high. Last weeks bloodwork was 10, when the limit is 4.

Ive read about allergies and that stuff, but I dont have any, I believe. Should I be concerned about this?

Thanks for reading. I know somehow I will be ok. :-)

Doctor also believes, of course, this isnt related to Cipro.

Sorry to hear that, maybe it might be MS. Let us no the results doh :)

it sounds like you ARE being a good advocate for yourself.
but, could you bring someone with you to the neuro appt? it's helpful for advocacy and also just to have a 2nd set of ears.

I just remembered that I read another article a few months ago about the serious problems with the antibiotics called flouroquinolones (which includes Cipro). I'm not saying this is your problem but your doctor is wrong to suggest the Cipro could never cause a problem. The drug has a black box warning.

So keep an open mind. Then again your symptoms could be MS related or anxiety or a host of other things. But Cipro isn't totally out of the realm of possibility.

http://well.blogs.nytimes.com/2012/0...-side-effects/

I was shocked to realize that these antibiotics can also raise one's risk of retinal detachment by 5x! I already knew about tendon ruptures. There have been lawsuits. Note the story of Lloyd Bach in this article and his tingling, joint problems, fatigue etc.

I hope you are feeling better soon Sunflower. Show your doc the article.

One expert said it could take a year to resolve so there is hope if it is indeed the Cipro.

Hi Natalie
 

I didn't know about all those drugs and what could happen either. I did indeed have a host of problems I now think is due to cipro, levaquin, and several others I was on. Had three tendons rupture in my ankle with no apparant cause or injury. They wanted to do tendon transfers which I declined on as I have PN. The doctors do not tell you the risks associated with these medications. I had some serious illness that required the antibiotics and a disease specialist, who put me on the legaquin. What a mess....Docs. should tell folks the risks first. ginnie

Wow Ginnie -- 3 tendon ruptures? Yikes!! I figured out after using Cipro for UTIs that it makes me extreme depressed and my moods are wacky and all over the place (my DH wondered what on earth was going on). So I'm going to try to stay away from it. Yes, docs should let people know these things. The point is that there are other safer antibiotics for people to take than Levaquin and Cipro, particularly if you have a run of the mill UTI. I hope your tendons are okay now.

Hi Natalie
 

I didn't walk well with the tendon problem for years. In fact I was misdiagnosed with anterior tibial tendon disorder. Never did an MRI to really find out what was going on. I had three tendons including the archilles torn. I didn't have any injury or fall. Started on some suppliments with a physiatrist, including B12 shots, and a few others. The ortho didn't want to do the surgery because of the PN in that same ankle and foot. I did heal, but not perfect. Walking is limited but much much better now.
I went on a cruise, and got type A flu, and an ear infection called psuedomonis
on top of the flu. I was sick for three months, flat out on my back. Had to take the levaquin as cipro didn't work and neither did a host of others. Then ankle sugery for ganglion cyst, then thats when the torn tendons were discovered and the PN. They are all connected, I am sure of it. I took so many antibiotics and a drug called relenza for the flu. I think my system got overloaded for sure. Nobody warns you of any dangers. If I had to do it again, I am not sure what I would do, as I was sick enough to take anything at that point. I sure hope others have a choice, and are told of the dangers.
My immune system has never been good.
Hope you are OK Natalie, I am here anytime you want to yak. ginnie:hug::grouphug: