Thank you SO much! I will most certainly let you know what the doctor says. I have a pretty extensive history of symptoms and I have them all complied and written up for the neuro to see. I'm hoping that will help her narrow things down a bit. I also had a bunch of labs done at the beginning of the month and also at the end of the summer...(again, hoping it will speed things along).

Also, A HUGE THANK YOU for the reassurance that it's going to be ok!!

How did your appt. go today? I hope all went well. Check in when you can.

When I read your post I was thinking maybe Lhermitte's. To me, it has never felt like sand, more like tingling and shock sensations. It's not comfortable.

Thanks for checking on me. I just got home...(long day). I guess I am officially in "Limbo-Land". I really liked the neuro and she was very thorough and listened to all I had to say. She sat down with me for a solid hour...it was nice not to feel like she was trying to push me out the door.

She said that some of my symptoms are consistent with MS and others are not. She ordered even more blood work. She thinks some of my experience maybe related to low vit-D. I've had low vit-D levels in a past lab...so she wanted to run it again (the previous test was over 8 months old). She said it may explain some of my experience...but that there is definitely something neurological also going on.

She also ordered a brain/spine MRI, and put me on what she described as an "old-school" neuropathic pain med to help with the tingling/pins and needles and the like. (I forget the name, and it's over at the pharmacy now).

She did all the reflex tests and such. I asked her how I was doing and she said, "mostly ok". (??????) She wouldn't really give me a hint of what she was thinking. She said that she wasn't going to start guessing until she had all the information from the tests to work from. (as frustrating as that is, it's actually the best approach...even though i just want to know!!).

So, I now I wait. They will get the ball rolling for the MRI and then I go see her again on March 15th to see what all the results are.

Thanks again, everyone!! I truly appreciate you being here!!

Sam,

It's good that you found a neuro that listens to you and spent so much time w you. And you see her again in 3 weeks!

She said that there is definitely something neuro going on.

This is good, Sam. I am glad you got some symptomatic treatment and are on your way to a diagnosis.

ANN