Hi all

I have taken the plunge, gotten the meds, put on my 'brave face' and taken the next step. I have been talking about this for a while, and now it is happening.

I took the first pill last night (think you guys call it Ampyra) - I won't lie, I am a bit nervous - I am going on a 12 night cruise at the end of next week, and I am nervous that side effects might be a problem for me, and ruin the holiday I have already paid for. My DH said 'toughen up and just do it' - easy from the cheap seats I reckon - I already take plenty of risks with using Ty and being JC+ - its not like I am being a big baby. I just want a fantastic cruise.

Still, too late now, done is done....I willl see how it goes and hope for the best.

I took Fampridine - AP something for awhile. For me there were no positive results (not expected in my case) but no side effects than a little blood in spit when I brushed my teeth. But that's me.

Hope it helps you, Lynn! I saw good results within a few days, I think.

Think positive! If it works you'll be able to walk better and have better balance on your voyage!

Any report, Lynn? I'd like to know how you are doing.

ANN

Nothing to share at this point - adverse or otherwise.... has only been a couple of days - stepping up to full dose tomorrow morning.

No news is good news....full steam ahead......

Thanks Lynn. I hope it continues to go well.

Enjoy the upcoming vacation.
ANN

Spoke too soon....

Had first full dose today - about an hour after first morning capsule, head was spinning like a disco ball, tingles all over my face, written words jumping all over pages and brain like cotton wool.....but did get a bit better as the day progressed.

Early days yet, we'll see how this progresses - as my husband said, maybe my brain is finding connections that have been missing for a decade or more??? I live in hope.

Lyn

Ok so the fun stuff is definitely over....and reality is starting to bite.

I am thinking the cure is worse than the complaint and I need to stop this now.

It would seem I am fine iwth the night tablet - because I am asleep when the main effects kick in, but today has been spectacularly nuts! It seems that about three three to four hours after I take this wonder drug, I have some kind of reaction.

Today, I was really scared. I nearly lost control of my bowels in a busy shopping centre, then (shortly after, but 100 kilometres from home) when supervising my learner driver daughter, trying to get home, my face and mouth were tingling like crazy, then my my mouth and my eyes (and eyelids) started moving and twitching like crazy. It lasted for what felt like ages.

I didn't know whether I needed to throw up, use the bathroom, or what before the twitching started. My head was spinning, my eyes and mouth started flickering, I was trying to tell my gorgeous DD what to do if I had a full on seizure (on a country road in the middle of nowhere), I was scared, and I had been hyperventilating when I felt so sick and dizzy, which certainly wouldn't have helped in terms of tingling, but the flickering and twitching came on more-so when I had controlled my breathing.

So.......I will be calling my neuro's office first thing on Monday to see what they have to say. No more day time tablets till I do though.

Interesting, but the timing is lousy!

Oh Lynn, I'm sorry you're having bad side effects. Seizures are a listed side effect. Are you prone to seizures?

Wow, It sounds like the med is not reacting well with you. Scary when your body is in controll and you don't know what is going on. I started Ampyra just this week and only have had one time that I was a little dizzy. I noticed a huge improvement with my walking the first day. My legs don't have that heavy, weighted down feeling and I don't feel like I'm struggling as much, to try to walk. My balance is also better, even with the little dizzy feeling. I also had a sudden on set of stomach probelms two says ago but it only lasted for 24 hours, so I'm blaming it on the flu bug. I wish you well.