[tkayewade]

I have RSD. I have two spinal cord stimulators. I am exhibiting, and have been for awhile, symptoms of MS. My last eye appointment showed optic nerve damage, and I have other symptoms and the dr has diagnosed me due to some old tests. How were you all diagnosed? I am treated with nerve blockers and pt for rsd. What should I expect to happen now? Any help would be appreciated. Thank you.

TK

[SallyC]

Welcome TK. It's not unusual for 2 or 3 Immune diseases
to go hand in hand. I'm glad you joined us and feel free to
ask any questions.

Good Wishes.

[Jules A]

Hi and welcome. Unfortunately there doesn't seem to be any sure answers with regard to what we can expect.

My strategy is to plan for the worst but hope for the best. Please keep us posted.

[karilann]

I would imagine your docs would discuss with you a disease modifying drug for MS.
There are several on the market and they are marketed to slow the MS progression and reduce flare ups. Do some internet searches and get a feel for the old and new treatments so you can discuss them with your doctor.

Start here: http://www.nationalmssociety.org/abo...nts/index.aspx

It took me a long time to get my MS diagnosis! (10 years) But I ended up with multiple lesions on my brain and different symptoms that pointed to MS. There is a criteria to dx M.S.: Multiple lesions on brain or spinal cord. Symptoms separated by time and space (otherwise you had symptoms that came and went at different times). I did not have a spinal tap looking for O bands.

[tkrik]

Welcome to NT!

I was diagnosed based on MRI results and clinical symptoms.

As for what to expect now, it depends on how MS is effecting you and what you and your neurologist decide. Starting a DMD (disease modifying drug) is what most of us have done. There are also symptom management medications as well as the PT you are already doing.

Let us know how you are doing.

[ANNagain]

Hi Kaye.

I am reading this as RSD w some symptoms suggestive of MS. Is that right? Does your neuro have a plan to do an MS work-up? Have you even seen a Neuro or is it the Rheumy who thinks it might be MS?

I think I would get the diagnosis nailed down- as best as possible- it can take time as Karilann has said. There are MS Specialist and MSClinics. I'd find the one for my area or one that works w my insurance and go there.

Please let us know how you are doing.

ANN