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Old 04-05-2013, 06:59 AM #1
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thanks...I'm still confused about this subject. Like I said,I've never really had a major event except my legs locking that got me the dx. Most of the things I experience never go away now...like the spasticity. I have spasms in my calves almost all day and they occasionally wake me during the night. This has gotten worse over time.
My bladder is doing a bit better due to meds...so I'm sure if I didn't take the med it would seem worse than before. Bowel problems have increased the last 8 months, with increased incidences of accidents and inability to hold "noises" in Occasional double vision has increased, but it doesn't last long. And of course the cog fog seems to be worse, but that could be senior moments added in

This has to be one of the most confounding conditions for doctors to deal with; so many individual symptoms, no way of predicting what will happen in the future, and no cure. But I feel sorrier for all of us who don't know what each day will bring when we awaken each morning
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Old 04-09-2013, 01:25 PM #2
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Debbie, you sound a bit like me.
I am 55 and starting menopause (yeah I'm kinda late with that) so I'm not sure if my cognitive issues are my age and issues with menopause.
I'm also battling bladder issues a lot.
My spasticity does not come and go.....it just comes and stays.

I get a weird "off balance" in my head that is present more times than not.
However; I am labeled RRMS due to the fact that I have not had "newer or different" symptoms pop up.

BLAH
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Old 04-10-2013, 04:24 PM #3
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That's the confusing part, Karilann...I don't get those huge flare ups...just things that appear once in a while, then more often until they're permanent.
For instance, my trips to neuros began with a numb toe. Now all toes are numb, and I've had a couple of instances of the whole bottom of both feet feeling the same the last few weeks. My fingertips are now all numb too-that was a gradual thing that has become permanent. I have noticed the last couple of months an inability to open lids, pull off those safety seals on condiment bottles, things like that. I have to concentrate when holding things in my hands so I don't lose my grip.
warning---TMI ahead...
the bowel stuff has gone on off and on, but has become more frequent. My pcp gave me suppositories to 'install' for bleeding hemorrhoids, but they won't stay in because the sphincter muscle isn't strong enough, so I have to hold it in until it melts. Ugh...and every time I move, I toot...which reminds me so much of MIL with Alz...but I can't help it. It's so embarrassing.
When I tell my neuro about these things he tells me about patients who are worse off. Sorry for them, but what about what is going on with my sxs? Am I getting worse or not? Why don't these things go away???
I guess I have to become a bit confrontational with him next appt...I want answers.
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