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Old 04-05-2013, 02:12 AM #1
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skywalker1988 skywalker1988 is offline
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Join Date: Apr 2013
Location: Georgia
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skywalker1988 skywalker1988 is offline
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Join Date: Apr 2013
Location: Georgia
Posts: 218
10 yr Member
Default Newly diagnosed 24 year old with MS

Hi I'm Luke, and I'm 24. I'm hoping to get some advice and direction from this forum. My story begins about two and a half months ago. The last 2 years have been really difficult for me, my father passed, I got a divorce, and late last year I had 2 surgeries within a month. Emotions were high and up and down. I've always been an emotional person, and I've struggled with depression with most of my life. I had began going to a new church after my surgeries, got a new job as well. Things were pretty normal for me until this year. For some reason I didn't like my job anymore, nor the people at my new church, so i decided to leave. My emotions were in the downward spiral again. So earlier this year I decided to go to my family doctor for some emotional help. I explained all that happened to me, and he said that he thought I had type 2 biopolar disorder. So he put me on Topamax. I took the meds, and after a weeks time almost, i could'n't hardly sleep and felt bad all the time. So I went back, and he prescribed Klonopin, which that helped a lot getting my sleep back into order. I got that medicine on a Friday.

The next Thursday, I was driving to my church, when I suddenly started having double vision plus I didn't feel good at the time. This lasted all day long, and thank God I got home safely. So this is where the big journey begins...I end up going to my doctor the following Monday, he said that I needed to see an optomologist, a special eye doctor. I went, and they said nothing was wrong with my eyes and that I needed to see a neurologist asap. So I went that Wed, and the neurologist did an MRI on my brain without contrast, and three blood tests. The blood tests came back negative, but the MRI showed a spot on my brain. He then said to do an MRI with contrast, to see if the spot reacts to the contrast, in which it did not.

At this time also, my family doctor took me off of Topamax and Klonopin to see if the double vision would stop. And it did not help, and that was a month ago that I've been off. Most of the time double vision happens when I'm in a riding vehicle. The doctors have stated that I cannot work or drive until their is an answer to this. I have had headaches everyday, not escrutating ones but ones that hurt nonetheless, for one month straight. I was told a few days ago that I would be going to the hospital today and possibly to stay a few days so they could run tests. However when I got to my neurologist office today, he told me that instead of doing hospital tests such as a spinal tap, that he would go ahead and confirm that I have MS, or really the last step before MS. He told me that I would start Refrib shots soon, and that for me to see him in 3 months to have another MRI done to see if the spot moved or advanced etc...

My question to you all is I have been without work and I had to even turn my car in because I could not afford it, is that should i get a second opinion, or are there any tests left to do....I am really upset at all of this to be honest. I need answers and even the doctors are saying they don't know what to do next other than just wait and see the treatment shots and the MRI. I'm afraid. I was actually excited that they were going to do tests because then we could find out more...but instead I got diagnosed and it's another waiting game. Please help me if you can.
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