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#11 | |||
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In Remembrance
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#12 | |||
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Elder
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#13 | |||
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Member
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I need answers, not a therapy session. I went to a therapy session three times, where all I did was sat and talked for an hour with no feedback. IF this forum is going to be the same thing, then I should leave and find somewhere else.
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#14 | |||
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Elder
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All we can do here is offer moral support and listen and try to offer advice. I wish we could do more but what more could we possibly do? I can totally empathize with what you are going through. If I were your parent I could personally take charge, but even then I don't know how much I could do.
You have to go through the system and wait for all of the steps just like all of us had to do. We can't make it go any faster for you, as much as we would like to help you. Try not to stress out if you can. ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#15 | |||
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Senior Member
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Eric, I hope your anger with us is from frustration. We aren't doctors, and don't play doctor. Maybe you are looking for useful suggestions rather than commiseration? You are getting suggestions, but here's another ~ since you have no money or insurance how about asking for a referral to a teaching hospital, a University Medical Center? They usually offer big discounts.
For example, when I was in the diagnosis process I was in your situation; no money and no insurance. The one neuro I saw (and paid full fare to see) referred me to a UMC that was about 2 hours away. I applied for received a 90% discount. Sounds like you need a neuro who will act on your problem, not wait. Might as well be one you might can afford.
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RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
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#16 | |||
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Magnate
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Quote:
No one here is a Doctor or even claiming to be a Doctor. It would be remiss of anyone to start handing out medical advice since your symptoms and the management of MS is between you and your Neurologist. If you are not happy with your Neurologist then please look for a new one. We can offer suggestions, which may or may not help, but if you don't want to hear or listen I am not sure what the point is ![]()
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Dx RRMS 1984 |
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#17 | |||
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Magnate
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Pain issues are very common in MS:
http://www.nationalmssociety.org/abo...ain/index.aspx Managing MS pain: http://www.nationalmssociety.org/liv...ain/index.aspx If your parent(s) have healthcare you can still be covered under their health insurance until you are 26 years old: http://www.dol.gov/ebsa/faqs/faq-dependentcoverage.html http://www.hhs.gov/news/press/2012pr...20120619b.html
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Dx RRMS 1984 |
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#18 | |||
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Grand Magnate
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if you call 1-800-FIGHT MS you will be able to find your local MS Society.
they might be able to give you referral info for someone in your financial circumstances. try to deal with 1 thing and 1 day at a time while still being your own best advocate. don't give up. ask Q's of lots of people and you might be steered towards some help. it's called networking. lots of us may have suggestions. most of them might not work out, but we'll do our best to help you.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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#19 | |||
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Senior Member
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Just realized I called you the wrong name. I'm sorry!
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RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
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#20 | |||
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Member
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Quote:
I have an MS issues of my own, that doesn't have any answers. Sucks, it's fainting/passing out/seeing stars in a hot shower. My bloodwork, shows I am healthy...UGH!!! Seriously, there's jack-squat out there. Grrrrr.... And group therapy...yeah, I personally, keep my therapy talk to psyche central, but yeah....I hear ya...not much out there. Call the NURSES!! Maybe they can give answers to this terrible disease!!
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