[Kitty]

Originally Posted by SallyC

No wonder you had to go on TEC...LOL

LDN wasn't doing anything for me anymore. It seemed a waste to keep buying it if I had no improvements. It worked for a while but I guess I just built up an immunity to it? I don't know.....but I need to be taking something. Tec seems to be something I can tolerate so I'll take it till I can't!

[OmaDot]

Originally Posted by Kitty

I'm so sorry you're having to stop. I've heard of some folks having terrible side effects. So far I haven't had any but I'm just on my second week of the full dose.

I hope you find something you can tolerate. I can't tell if the Tec is helping me but I feel better just taking something that might do me some good.

Good thoughts and wishes for you on the Avonex.

I started with symptoms 3 days into the full dose. The diarrhea and cramping became intolerable. I was on Avonex previously and tolerated it well so I will resume that. Just have to get my body back to normal. I took my last dose of tec on Saturday and still have sx. Sounds like it is going well for you, I am so happy for you!

[Kitty]

I have to have blood work again in May and see the Neuro to bring him up to speed on my progress with the Tecfidera.

So far so good with it. This Friday will mark the two week point on the full dose.

I hope I keep tolerating it well. I really can't tell any difference in my MS while on this med but when I was on the Interferons I couldn't really tell if they were helping or not. Hopefully my next MRI will show that there is not any progression.

[jprinz99]

Exciting news for me- MS Active Access put me in touch with Patient Assistance Network Foundation. I was approved by PAN for 5K on initial grant and 5K on a "2nd grant option". Coordinated with my specialty pharmacy and neuro for approval/authorization. My medication is scheduled to arrive today

MS Active Access said to contact the when I get 1-2 months worth of funding left so they can try and hook me up with additional aid. The 10K should last cover about 4.5 months of copays. This will be my first MS medication. The process was surprisingly pretty quick and easy.

For some strange reason I feel like doing the happy dance

[Kitty]

Originally Posted by jprinz99

Exciting news for me- MS Active Access put me in touch with Patient Assistance Network Foundation. I was approved by PAN for 5K on initial grant and 5K on a "2nd grant option". Coordinated with my specialty pharmacy and neuro for approval/authorization. My medication is scheduled to arrive today

MS Active Access said to contact the when I get 1-2 months worth of funding left so they can try and hook me up with additional aid. The 10K should last cover about 4.5 months of copays. This will be my first MS medication. The process was surprisingly pretty quick and easy.

For some strange reason I feel like doing the happy dance

So happy for you!! I hope you do well on the meds. So far I'm doing wonderfully!

[jprinz99]

day 3 on starter dose - so far all is good!

[Kitty]

Originally Posted by jprinz99

day 3 on starter dose - so far all is good!

That's great, Jane! I'm into my 3rd week on Tec and all has been good so far. No bad side effects.....just a little tingling at times a couple of hours after I take it but even that is slowly stopping.

It's so nice to take something and not feel horrible afterwards.

[Kitty]

Well, I have enough pills to last me through Monday. I called Right Source (the pharmacy that filled the first month) and they said my Neuro has to request the maintenance refills.

Just got a call from Humana and was told they denied the request from my Neuro for a maintenance dose prescription.

I just called and left a message with his nurse that the denial letter was faxed to them yesterday and the appeal process is explained in that letter.

I guess they will have to respond to Humana asking that the prescription be honored. I'm not sure if MS Active Source will have the financial assistance I need for me to continue on this med.

I hope so because I was tolerating it so well. I'll just continue taking what I have and hoping they get this worked out so I can continue it.

[ANNagain]

Double-bummer, Kitty. The short notice on the denial and the concern about financial assistance. I hope someone works magic by Monday.

ANN

[D0ct0rT]

Hello all,

I've been taking it for a little over a month now. I've tolerated this MS med better than all the shots and pill type tried. I eat eggs for protien before taking my morning dose and an antinausea before the PM dose. I had blood work and everything seems routine so we are good there. I didn't want to waste my $ and have no or worse results but I'd say, "So far so good" on Techfidera!