[Kitty]

I've tolerated this med better than any other I've tried so I hope the powers that be see fit to let me continue with it.

It's all because of the $$ that the insurance company doesn't want to pay. Well, I can play that game, too. Maybe I'll just not pay my premium next month because it sure seems like I'm paying for NO coverage.

[SallyC]

Insurance Companies all suck. How can the do that, after
they've already approved it? That seems crooked to me.

[Kitty]

I'm hoping the Neuro's office calls me back today with some good news.

[barb02]

Good luck Kelly. Every six months my insurance denies me coverage for a med that I have been taking for almost 7 years. Then the doctor has to send an appeal and they approve it. It is really annoying because I have to remind the doctor of the process every time.

[jprinz99]

Hope you get approval to continue with the drug.

Yesterady got my first "flushing s/e" Whoo boy that was fun- NOT. It was described to me as a mild redness and heat sensation "...much like a mild sunburn"

HaHa I got prickly/tingles at first & then got really hot. Felt like I had actually burned my face and neck. Skin turned lobster red, like I had fallen asleep on the beach. I used cold wet towel and just sucked it up. {well truth be told we joked about it and I whined a bit}

Got it again later in the evening. Tummy pains off & on but not bad; sort of like a GI bug can give you pains. The plus side is it's hep the C problems

All in all, it's still not too bad a trade off.

[LillyMS]

I was on techfidera for one year and it severely lowered my WBC (gave me leukopenia). Also had nasty flushing every single time I took it and a very runny nose.

This stuff was too toxic for my taste! I had a huge concern I would end up with CANCER since there is definite cancer risk. Anyone who saw my bloodwork results would clearly see why. A LOT of my body's natural defenses protecting me from getting cancer was compromised!!

I stopped tecfidera very recently and can only HOPE my WBC goes back to NORMAL. The fine print on this drug says it will NOT return to normal baseline. This does NOT sit well with me and I regret ever going on it. Wish I had tried LDN first.

I am now switching to LDN.

[jprinz99]

Hope you do well on LDN Lilly, thanks for giving a clear picture of how it affected your body.

[Kitty]

Still waiting for my Neuro's office to call me back. They called this morning to verify what kind of insurance I had and said they would be calling them today and then call me back to let me know the verdict. I hate waiting for someone else to decide what to do about my future......

[Kitty]

Well, I contacted MSActive Source, Right Source Pharmacy and my Neuro's office.

I was on the phone for 86 minutes (per my phone timer) yesterday afternoon and spoke to approximately seven different people. After all that phone time I was exhausted and more confused than before I started!

I'm not going to call anyone else. They can sort this all out and, if they want to help me stay on this medicine, they can let me know when to expect the next shipment. I. Am. Done.

[SallyC]

You poor thing. That stinks!!
Let hope they straighten it out for your benefit.