[OmaDot]

Originally Posted by OmaDot

I have been on 1 240 pill a day now for 13 days. My blood work all came back good but still having stomach cramps and diarrhea. Told them I would go back to 2 pills a day and give it another week. If things don't settle down I will be back on Avonex. I'm actually about ready to go back to injections, at least I only had 1 day a week that I didn't feel good

I realized something today that may make a difference for me. I have not been a milk drinker for years but when I started taking Tecfidera I started drinking a lot of milk. Some of this may be lactose intolerance, so I am completely changing the foods that I have been taking my meds with. We will see!

[Kitty]

I've had to completely give up milk and milk products. Since I've gotten older I've developed an intolerance to it.

I never have liked milk but I do like ice cream. That's been difficult for me to give up but the effects I suffer after eating it just aren't worth it.

I was told to eat something that has at least 6 grams of fat in it when you take your pill. I hope you feel better with your new dietary changes.

How are you liking the Tecfidera?

[Kitty]

Well, today was day 9 on the full dose and everything seems too be going just fine. No side effects unless I don't eat before taking the pill.

My neuro wants to see me in May for blood workup. He was so happy that I'm tolerating it well but said that everyone he's prescribed it to has done well on it.

Onward!

[OmaDot]

Originally Posted by Kitty

I've had to completely give up milk and milk products. Since I've gotten older I've developed an intolerance to it.

I never have liked milk but I do like ice cream. That's been difficult for me to give up but the effects I suffer after eating it just aren't worth it.

I was told to eat something that has at least 6 grams of fat in it when you take your pill. I hope you feel better with your new dietary changes.

How are you liking the Tecfidera?

Called the Dr today and told them that I give up! They are working on getting the Avonex restarted for me. I was unable to tolerate the side effects of Tecfidera.

[Kitty]

Originally Posted by OmaDot

Called the Dr today and told them that I give up! They are working on getting the Avonex restarted for me. I was unable to tolerate the side effects of Tecfidera.

I'm so sorry you're having to stop. I've heard of some folks having terrible side effects. So far I haven't had any but I'm just on my second week of the full dose.

I hope you find something you can tolerate. I can't tell if the Tec is helping me but I feel better just taking something that might do me some good.

Good thoughts and wishes for you on the Avonex.

[SallyC]

Kell, are you still taking LDN? I talked my Doc into writing
my LDN script, since Dr S retired. Yea!!

[Kitty]

Originally Posted by SallyC

Kell, are you still taking LDN? I talked my Doc into writing
my LDN script, since Dr S retired. Yea!!

No, Sal. I haven't taken it for a couple of years now.

[SallyC]

Originally Posted by Kitty

No, Sal. I haven't taken it for a couple of years now.

No wonder you had to go on TEC...LOL

[OmaDot]

Originally Posted by Kitty

I'm so sorry you're having to stop. I've heard of some folks having terrible side effects. So far I haven't had any but I'm just on my second week of the full dose.

I hope you find something you can tolerate. I can't tell if the Tec is helping me but I feel better just taking something that might do me some good.

Good thoughts and wishes for you on the Avonex.

I started with symptoms 3 days into the full dose. The diarrhea and cramping became intolerable. I was on Avonex previously and tolerated it well so I will resume that. Just have to get my body back to normal. I took my last dose of tec on Saturday and still have sx. Sounds like it is going well for you, I am so happy for you!

[Kitty]

I have to have blood work again in May and see the Neuro to bring him up to speed on my progress with the Tecfidera.

So far so good with it. This Friday will mark the two week point on the full dose.

I hope I keep tolerating it well. I really can't tell any difference in my MS while on this med but when I was on the Interferons I couldn't really tell if they were helping or not. Hopefully my next MRI will show that there is not any progression.