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The "Positive" Tecfidera/BG-12/Fumaderm (modded) Thread!

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Old 04-04-2014, 10:08 AM #1
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Originally Posted by jprinz99 View Post
Exciting news for me- MS Active Access put me in touch with Patient Assistance Network Foundation. I was approved by PAN for 5K on initial grant and 5K on a "2nd grant option". Coordinated with my specialty pharmacy and neuro for approval/authorization. My medication is scheduled to arrive today

MS Active Access said to contact the when I get 1-2 months worth of funding left so they can try and hook me up with additional aid. The 10K should last cover about 4.5 months of copays. This will be my first MS medication. The process was surprisingly pretty quick and easy.

For some strange reason I feel like doing the happy dance
So happy for you!! I hope you do well on the meds. So far I'm doing wonderfully!
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Old 04-08-2014, 08:59 AM #2
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day 3 on starter dose - so far all is good!
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Old 04-08-2014, 01:00 PM #3
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day 3 on starter dose - so far all is good!

That's great, Jane! I'm into my 3rd week on Tec and all has been good so far. No bad side effects.....just a little tingling at times a couple of hours after I take it but even that is slowly stopping.

It's so nice to take something and not feel horrible afterwards.
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Old 04-10-2014, 12:07 PM #4
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Well, I have enough pills to last me through Monday. I called Right Source (the pharmacy that filled the first month) and they said my Neuro has to request the maintenance refills.

Just got a call from Humana and was told they denied the request from my Neuro for a maintenance dose prescription.

I just called and left a message with his nurse that the denial letter was faxed to them yesterday and the appeal process is explained in that letter.

I guess they will have to respond to Humana asking that the prescription be honored. I'm not sure if MS Active Source will have the financial assistance I need for me to continue on this med.

I hope so because I was tolerating it so well. I'll just continue taking what I have and hoping they get this worked out so I can continue it.
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Old 04-10-2014, 04:32 PM #5
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Double-bummer, Kitty. The short notice on the denial and the concern about financial assistance. I hope someone works magic by Monday.

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