Home Menu

Site Navigation




advertisement
NeuroTalk Support Groups > > >

The "Positive" Tecfidera/BG-12/Fumaderm (modded) Thread!

Reply
 
Thread Tools Display Modes
Old 04-29-2013, 07:46 AM #1
kicker's Avatar
kicker kicker is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default
Eddie, you are one of the most positive people ever. If BG-12 was approved for PP, I'd try it. Keep us informed about your journey. Hope it helps you. You make me feel better with your positive attitude. Thanks.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013), ewizabeth (04-29-2013)
Old 04-29-2013, 08:15 AM #2
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
  
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default
I'm with you, Eddie! Waiting on financial assistance approval from MSActiveSource. Neuro's nurse says it takes about 20 days, so May 4th is 20 days from when she sent in the paperwork. Had my baseline MRI and bloodwork done on the 12th.
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013), ewizabeth (04-29-2013)
Old 04-29-2013, 10:26 AM #3
ANNagain ANNagain is offline
Senior Member
  
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
Default
Eddie,

I hope it works for you- even better than you can dream!

ANN
ANNagain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013)
Old 04-29-2013, 10:29 AM #4
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
I wish you only the best results..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013)
Old 04-29-2013, 10:58 AM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (04-29-2013), Charlie2015 (04-22-2014), dmplaura (09-08-2013), EddieF (04-29-2013), ewizabeth (04-30-2013), jnewk (09-08-2013), jprinz99 (06-04-2013), KittyLady (04-29-2013), macksmommy2003 (05-17-2013), Snoopy (04-29-2013), tkayewade (05-02-2013)
Old 04-29-2013, 01:20 PM #6
KittyLady's Avatar
KittyLady KittyLady is offline
Member
  
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default
Im with you on that one Sally!
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
KittyLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (04-29-2013)
Old 04-29-2013, 03:22 PM #7
karilann's Avatar
karilann karilann is offline
Member
  
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
karilann karilann is offline
Member
karilann's Avatar
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
Default
I'm still waiting and I can't wait to get the ball rolling. I will let everyone know how I am doing too. I did okay on Betaseron, but I just can't deal with the shots anymore. My skin has about given out after 11 years!
__________________

.
If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice.
.
karilann is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (04-29-2013), dmplaura (09-08-2013), EddieF (04-30-2013), ewizabeth (04-30-2013), My3sons (05-24-2013), SallyC (04-29-2013)
Old 12-28-2013, 05:18 PM #8
skcullers skcullers is offline
Junior Member
  
Join Date: Nov 2013
Posts: 6
10 yr Member
skcullers skcullers is offline
Junior Member
 
Join Date: Nov 2013
Posts: 6
10 yr Member
Default You might try
I switched to ARRP medicare RX plan d this year and it said it was covered for secondary progressive and I believe primary too. Good luck!
skcullers is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (08-28-2014)
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Lyme: such a thing as "false positive"..? 22dreams Lyme Disease, Shingles and Other Microbial Conditions 0 03-25-2010 05:36 PM
"positive thinking" and healing-to Annie and others. alice md Myasthenia Gravis 24 11-01-2009 05:53 PM
Prayers/Positive Thoughts For Our Gene, aka, "ponyboy", Please...... Ponygirl Sanctuary for Spiritual Support 71 11-30-2006 01:43 PM


All times are GMT -5. The time now is 06:50 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home