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#1 | ||
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Senior Member
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Eddie,
I hope it works for you- even better than you can dream! ANN |
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"Thanks for this!" says: | EddieF (04-30-2013) |
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#2 | |||
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In Remembrance
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I wish you only the best results..
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__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | EddieF (04-30-2013) |
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#3 | |||
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In Remembrance
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__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#4 | |||
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Member
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__________________
Dx RRMS April 1992 Yearly flares from 92 to 11 MS induced seizures 2002 Flare Oct 2011 Flare Dec 2011 Left disabled after 2 previous flares Betaseron '02, Copaxone '12, Tecfidera '13 (allergic reaction to all) No longer taking any MS therapy meds |
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"Thanks for this!" says: | SallyC (04-29-2013) |
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#5 | |||
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Member
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I'm still waiting and I can't wait to get the ball rolling. I will let everyone know how I am doing too. I did okay on Betaseron, but I just can't deal with the shots anymore. My skin has about given out after 11 years!
__________________
. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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#6 | |||
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Member
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Received my 1st month's supply. I'm really excited. From initial call to neuro to receiving med, exactly 1 month. My hold up was bcbs. They rejected so had to use financial assistance. I'll start tomorrow and keep you posted. I didn't see any side effects with Gilenya so I don't forsee any with this oral. DMF, the active ingredient is something my previous employer used to sell. If FDA ever allows generic, price should be greatly reduced. I can't recall the exact wholesale price but I think it was less than a month's supply per kg. Don't know what other meds it is used in but I do recall that a big pharma did purchase it. May have been for psorias too in the U.S. but in injectible or infusion form.
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"Thanks for this!" says: | SallyC (05-01-2013) |
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#7 | |||
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Member
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As of May 31, I have not received Tecfidera.
I have spoke to MS Active Source about 8 times and it seems they keep faxing the script to Medco mail order pharmacy....but when I call the pharmacy, they have not received it. I verified the fax number with my pharmacy.....what a mess. Finally I called my doc's office and asked why they couldn't just fax the script to the pharmacy? Apparently there is more to it than that with a brand new drug....so Doc's office told me that out of 17 of their patients who applied for the Tecfidera in April, only 3 are currently taking it. The process has been slow with lots of confusion. So I guess I keep waiting and calling...waiting and calling.....calling and waiting ![]()
__________________
. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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"Thanks for this!" says: | ANNagain (05-31-2013) |
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