advertisement
Reply
 
Thread Tools Display Modes
Old 04-28-2013, 08:43 PM #1
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
Default The "Positive" Tecfidera/BG-12/Fumaderm (modded) Thread!

Since i'm expecting Tecfidera to shine, amongst a HUGE portion of MS'ers, it's time for a positive results thread for the soon to be success stories.
I'll reply after my 1st week on & yes, i'm hopefull it'll be positive.
EddieF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (04-28-2013), Judy2 (04-29-2013), KittyLady (04-29-2013), My3sons (05-24-2013), sabendro (05-22-2013), SallyC (04-28-2013)
Old 04-28-2013, 09:16 PM #2
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Thumbs up

I thought about it briefly but I am doing ok on Copaxone. I hope you'll have great results and I look forward to hear how it works for you Eddie!
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013)
Old 04-29-2013, 07:46 AM #3
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Eddie, you are one of the most positive people ever. If BG-12 was approved for PP, I'd try it. Keep us informed about your journey. Hope it helps you. You make me feel better with your positive attitude. Thanks.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013), ewizabeth (04-29-2013)
Old 04-29-2013, 08:15 AM #4
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default

I'm with you, Eddie! Waiting on financial assistance approval from MSActiveSource. Neuro's nurse says it takes about 20 days, so May 4th is 20 days from when she sent in the paperwork. Had my baseline MRI and bloodwork done on the 12th.
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013), ewizabeth (04-29-2013)
Old 04-29-2013, 10:26 AM #5
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
Default

Eddie,

I hope it works for you- even better than you can dream!

ANN
ANNagain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013)
Old 04-29-2013, 10:29 AM #6
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

I wish you only the best results..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
EddieF (04-30-2013)
Old 12-28-2013, 05:18 PM #7
skcullers skcullers is offline
Junior Member
 
Join Date: Nov 2013
Posts: 6
10 yr Member
skcullers skcullers is offline
Junior Member
 
Join Date: Nov 2013
Posts: 6
10 yr Member
Default You might try

I switched to ARRP medicare RX plan d this year and it said it was covered for secondary progressive and I believe primary too. Good luck!
skcullers is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (08-28-2014)
Old 09-09-2013, 08:59 AM #8
jfcincy56 jfcincy56 is offline
New Member
 
Join Date: Sep 2013
Posts: 3
10 yr Member
jfcincy56 jfcincy56 is offline
New Member
 
Join Date: Sep 2013
Posts: 3
10 yr Member
Default I feel really good on Tecfidera

I had to re-start the high dose after experiencing the bad side effects. But the second go around I made a lot of changes to my diet, took only 1 240mg pill a day until I felt "good" again, and aggressively treated every side effect.

When I added the second pill at night, I went back to the changed diet, aggressively treating every side effect, etc., and within three days, I felt good again.

The only side effects I feel now is a light "sun burn" feeling on my legs from time to time, and a little heartburn (nothing like the fire in my digestive system the first go around!).

I had been going downhill rapidly before I started Tecfidera. I've now been on the full dose for a month and I feel better than I've felt in years. I hope it's the drug and not a coincidence! I would think I would have to be on the drug for a year at least to know if I really am stabilized, or maybe getting better (I know that's a dream, but I can hope, right?)

Has anyone else out there felt better on the drug? Has anyone else seen improvement while on the drug?
jfcincy56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (09-10-2013), ewizabeth (08-28-2014), karilann (09-10-2013), My3sons (09-11-2013), SallyC (09-09-2013)
Old 09-10-2013, 07:33 AM #9
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default

Quote:
Originally Posted by jfcincy56 View Post
The only side effects I feel now is a light "sun burn" feeling on my legs from time to time, and a little heartburn (nothing like the fire in my digestive system the first go around!).
Yes! I've been calling it "flushing" because I really do turn red but it also feels like a sudden sunburn (mine is on face and arms/shoulders). Thank you for mentioning that.

Glad you are feeling good on the med. I cannot say I feel better on it, because I never felt bad before.
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (09-10-2013), My3sons (09-11-2013), SallyC (09-10-2013)
Old 09-10-2013, 08:13 AM #10
karilann's Avatar
karilann karilann is offline
Member
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
karilann karilann is offline
Member
karilann's Avatar
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
Default

jfcincy56

I think we will find in the near future that the dosing schedule needs to go slower for this drug. Most people are fine until they hit the full dose. I think they start the full dose a little too soon. So happy you are tolerating TEC! I pray you see real results soon
__________________

.
If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice.
.
karilann is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (09-10-2013), ewizabeth (08-28-2014), My3sons (09-11-2013), SallyC (09-10-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lyme: such a thing as "false positive"..? 22dreams Lyme Disease, Shingles and Other Microbial Conditions 0 03-25-2010 05:36 PM
"positive thinking" and healing-to Annie and others. alice md Myasthenia Gravis 24 11-01-2009 05:53 PM
Prayers/Positive Thoughts For Our Gene, aka, "ponyboy", Please...... Ponygirl Sanctuary for Spiritual Support 71 11-30-2006 01:43 PM


All times are GMT -5. The time now is 12:14 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.